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The Irish Hospice Foundation welcomes the newly published report Finite Lives which examines State Services around dying, death and bereavement.
Angela Edghill, Irish Hospice Foundation, Advocacy and Public Engagement Manager said the ground breaking report is the first of its kind and proves that dying is everyone’s business. Ms Edghill added: “It provides great evidence for a more coordinated and strategic approach to dying, death and bereavement by all of the agencies and Departments of State. Only good can come of this report since the issues it examines affect us all, without exception - but only if the State acts on Senator O'Donnell's sensible, practical and reasonable recommendations.”
The report makes 16 key recommendations including the promotion of the Irish Hospice Foundation’s Think Ahead planning tool. The purpose of the Think Ahead document is to guide members of the public in discussing and recording their preferences in the event of emergency, serious illness or death.Further information is available on www.thinkahead.ie Finite Lives by Senator Marie-Louise O’Donnell was launched by An Taoiseach Enda Kenny this afternoon (Wednesday, 17 May) at Government Buildings.
The report is available here for download.
Father's Day is June 18th this year and we have two of Bono's paintings for the Peter and Wolf charity project available to buy as limited edition screen prints.
This project was in collaboration with Gavin Friday and the Friday-Seezer Ensemble who reworked SergeiProkofiev Peter and the Wolf, raised over €370,000 for The Irish Hospice Foundation. Bono’s unique style of illustrations created with the assistance of his daughters Jordan and Eve were featured in the accompanying book.These prints, the perfect gift for Father's Day, are exclusively available here. If your Dad prefers a good book, why not check out Sons + Fathers. This anthology of stories celebrates the unique relationship between sons and fathers. This book was inspired by the drawings that Bono drew when his own father was receiving hospice care. It features some well-known men, including Bill Clinton, Gabriel Byrne and Roddy Doyle, who share their unique relationships with their fathers. The book is available here.
From Dancing Shoes to Hiking BootsMake every step count for hospice care this September by walking the Camino de Santiago with actress Katherine Lynch in aid of the Irish Hospice Foundation (IHF). The Leitrim-native will walk the scenic coasts of Portugal and northern Spain to support hospice care and IHF programmes such as Nurses for Night Care and Hospice Friendly Hospital Programme (HFH). Katherine's idonate link if you wish to support is here. The IHF event takes place from September 24th to 1st October taking in beaches, rolling hills and gentle, flat paths with walking distances of approximately 20km daily. This section of the Camino is located in the region of Galicia – a region also known as the ‘Ireland of Spain’.
Helen McVeigh, IHF Director of Fundraising, commented: “By stepping out on the Camino you are embarking on a personal challenge but also supporting people nationwide who are facing death or bereavement. Our vision is for no one to face these difficult times without the care and support they need. This is your chance to make every step matter.Katherine is an amazing ambassador and we’re delighted to have such a high profile personality leading the way. Nurses for Night Care service provided 2,027 nights of care in 2016 and helped 600 families. 48 hospitals have been involved in our HFH programme since it was founded 10 years ago.”
Flights, accommodation and full board are included and full details can be found here or by calling 01 6793188.
Forum on end-of-life in Ireland conference 2017
- Theme: “Have Your Say: Your Life, Your Death, Your Say”
- Whem : Tuesday 10th October 2017
- Where: Dublin Castle Conference Centre
A new group to copper-fasten the Hospice Friendly Hospital Programme in all adult, child and maternity hospitals across the country has been launched.The Health Service Executive and Irish Hospice Foundation (IHF) has announced the new Joint Oversight Group of the Hospice Friendly Hospitals Programme today (Thursday, 23 March). Marie Lynch, IHF Head of Healthcare Programmes said: “An average 30,000 deaths occur in Ireland every year. Approximately 48 per cent of those people will die in an acute hospital. “The Hospice Friendly Hospitals Programme is an initiative of the IHF to ensure that end-of-life, palliative and bereavement care is central to the everyday business of hospitals, and the best possible care is available to people at end-of life and their loved ones at this difficult time.”
The Hospital Friendly Hospitals Programme has been adopted by 48 hospitals nationwide since it was established in 2007 to improve the standard of end-of-life care in Irish hospitals. The new Joint Oversight Group is being formed to further support the embedding of the Hospice Friendly Hospital Programme within HSE structures. It will also examine ways to expand and develop the programme across the hospital system where possible.Dr Ciarán Browne, HSE Acute Hospital Division said: “We are very pleased to continue and extend our close working relationship with the Irish Hospice Foundation on the Hospice Friendly Hospital Programme. We recognise the importance of this work to patients, their families and staff. The HFH Programme supports our goal of creating a caring and compassionate environment across our hospital system.” The new group is chaired by Professor Cillian Twomey. It includes experts from clinical programmes in palliative care, older persons, emergency department and paediatric care and will meet three times a year. The HFH programme co-ordinates three networks for hospital staff to promote improvements in end-of-life care from the perspective of patients, families and hospital staff; the Acute Hospital Network, Maternity/Children’s Network and The End-of-Life Co-Ordinator Network. The programme advocates for investment in palliative, end-of-life and bereavement care services at the hospital, hospital group and national levels. It develops and promotes the use of ceremonial resources such as the end of life symbol, family handover bags, drapes and ward altars. It also develops promotional and educational supports for all hospital staff. It co-ordinates the Design and Dignity Project which aims to transform the way hospital spaces are designed for people at end-of life. It provides expert advice and guidance directly to hospital staff to support the implementation of the Hospice Friendly Hospitals Programme in their hospitals. Caption: Margaret McKiernan, Chairperson HFH Acute Hospital Network with Marie Lynch, Head of Health Care Programmes, Irish Hospice Foundation and Dr Ciaran Browne, National Lead, HSE Acute Hospital Division pictured at the announcement of new Joint Oversight Group of the Hospice Friendly Hospitals Programme
RTE's Claire Byrne Live did a recent special feature on our charity cycle from Porto to Lisbon in June.
Father and daughter Paul and Evelyn Kimmage, who are partaking in our cycle, speak about why everyone should be supporting end-of-life care. "It could be your loved one or it could be you."
You can donate here.
SIX hundred people with diseases other than cancer who were approaching death last year had their wish to die at home fulfilled with the support of Nurses for Night Care. The nationwide service supported by the Irish Hospice Foundation through donations from the public provides free night nursing care to people in their own home. Nurses stay throughout the night providing comfort and practical support to patients and their families. Retired pharmacist and mother of five Mona O’Riordan died peacefully at home with her daughter Aine by her side. Mona, originally a native of Birr, worked in her Dublin pharmacy until the age of 78 and was 92 when she died.
Aine said the family was “lucky” to make it possible for them to fulfil their mother’s expressed wish to die at home. “She had a really good life and a really good death, in her own bed, in her own home. You couldn’t ask for better than that.”“I’m not a nurse and I’d never been present at this stage of someone’s life before. The nurse was wonderful; from the moment she arrived she could not have been better. We knew she was going to mind our mother from a medical point of view but she also minded us. “We obviously miss her, but when you feel it couldn’t have gone any better that makes a real difference,” she said.
Caption: The late Mona O’Riordan with family. Retired pharmacist and mother of five, Mona died peacefully at home with her daughter Aine by her side helped by the Nurses for Night Care service.Marie Lynch, IHF Head of Healthcare Programmes, said: “Three quarters of Irish people would like to die at home, according to IHF research but only approximately one in four get to do so. Support from Nurses for Night Care enables people to die at home if that is their wish. 70% of people die from non-cancer illnesses every year such as dementia, heart disease, motor neurone disease, advanced respiratory disease and end stage kidney disease. Demand for the service grows annually. We provided 100 nights of care when launched the service 11 years ago. That number grew to 2,027 nights in 2016 costing €649,171. Care was delivered in 26 counties across Ireland and we are so very grateful to everyone who donated to make this difference. Referrals are made by the Specialist Palliative Care home care team to us and it is then arranged for a nurse to visit the home,” concluded Ms Lynch. The IHF has an agreement with the Irish Cancer Society to provide the service. The IHF receives core funding from Pobal from the Department of Housing, Planning, Community and Local Government’s Scheme to Support National Organisations 2016-2019.
University Maternity Hospital Limerick (UMHL) has been granted funding to refurbish their Rose Room as part of The Irish Hospice Foundation (IHF) and the HSE’s Design & Dignity Grants Scheme which transforms hospital spaces for patients at end of life. Approximately €7,200 has been provided – €5,003 of which is a Design & Dignity Grant with the remainder coming from UMHL. Marie Hunt, CMM2 Bereavement Counselling Midwife, UMHL, said: “On average there are 4,500 babies born here every year. Although the majority of women presenting at the Antenatal Clinic have a positive outcome, sadly there are women who experience fetal loss or fetal abnormalities.
Our ‘Rose Room’ is a quiet room for compassionate care where parents can receive difficult news in privacy. It is situated adjoining one of the main ultrasound rooms with an interconnecting door. When a doctor or ultrasonographer identifies a fetal abnormality on the ultrasound scan or when a woman/couple have been asked to return to the hospital for the results of diagnostic tests, there needs to be a private dignified comfortable space where they can be met and cared for. For the remainder of their antenatal care the women need to have this space available for them if they wish,” said Ms Hunt.Refurbishing the room will include painting the door and walls, change of flooring, installing soft lighting, removing the wall cupboards, installing soft furniture and adding an art feature. Clinical staff have been involved in drawing up the plans from the beginning, and many of the ideas have come from midwives, doctors and ultrasonographers working at the front line. “The newly refurbished Rose Room will represent our commitment to providing sensitive and compassionate care to women and their families when receiving bad news while providing a private and dignified space for them to receive their care,” added Ms Hunt. The Design & Dignity scheme previously funded a mortuary refurbishment in University Hospital Limerick as well as family rooms in St John’s Hospital and Nenagh Hospital and a bereavement suite in Ennis Hospital. Mary Lovegrove, Design & Dignity Project Manager with the IHF said: “The Design & Dignity programme has been running since 2010 and has funded 32 hospital projects across Ireland to date. Four important projects have already benefitted from the UL Hospital Group. We hope that this new ‘Rose Room’ will offer parents a dignified private space to be together at an intensely emotional time.
“Our vision for the Design & Dignity project is for an end of life sanctuary in every public hospital in the country by 2021 with approximately 60 projects completed as well as a HSE National Mortuary Capitals Programme underway,” concluded Ms Lovegrove.Design & Dignity is a partnership project of the IHF and HSE Estates and originated in the IHF’s Hospice Friendly Hospitals Programme. The HSE has adopted Design & Dignity Guidelines for all refurbishment and new builds. Caption: Pictured recently are Staff at University Maternity Hospital Limerick including Noreen Mann, Eileen Ronan, Eileen Quinlan, Jean Rafferty, Maria Gibbons, Rita O’Brien and Marie Hunt. UMHL has been granted funding to refurbish their Rose Room as part of The Irish Hospice Foundation and HSE’s Design & Dignity Grants Scheme. The IHF receives core funding from Pobal from the Department of Housing, Planning, Community and Local Government’s Scheme to Support National Organisations 2016-2019.