Advancing Neurological Illness

The Irish Hospice Foundation and the Neurological Alliance of Ireland completed a project looking at the palliative care needs of people with advancing neurological conditions from the perspective of Neurological Alliance of Ireland member organisations. The report and key messages from this work is available by clicking on the first 2 pictures below. In November 2014 a Round table meeting was held to launch the report, share information and provide some direction. The report of the round table meeting is the available by clicking on the 3rd picture below. For more information contact Deirdre Shanagher cover page IHF NAI Key findingsRoundtable Report  

ROLE OF PALLIATIVE CARE IN THE MANAGEMENT OF ADVANCING NEUROLOGICAL ILLNESS

People with advancing neurological illnesses such as Multiple Sclerosis, Motor Neuron Disease and Parkinson's Disease can experience a range of symptoms which cause discomfort and distress. These symptoms include reduced mobility, difficulty swallowing and communication difficulties. In treating these symptoms it is important to offer a care approach that addresses overall patient comfort.

If you need more information on the role of palliative care in the management of neurological illness - click the links below.

                                I have an advancing neurological illness - read on >>>

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I'm a healthcare worker looking after someone with an advancing neurological illness - read on>>>

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I have an advancing neurological illness

Over 700,000 people In Ireland are affected by neurological illnesses affecting the brain and spinal cord. People living with advancing neurological illnesses may wish to plan ahead for the care they would like to receive as their illness progresses. In particular they may want to consider their palliative care needs and end-of-life preferences. The information […] Read more >

I’m a healthcare worker looking after someone with an advancing neurological illness

Being involved in the care of a person with an advancing neurological illness can often be challenging. This section aims to assist healthcare professionals in the care of a person with an advancing neurological illness, in addition to the information provided on previous pages. Types of palliative Care:  Read more. When is palliative care appropriate […] Read more >

Round table Neurology palliative care meeting

The Irish Hospice Foundation and Neurological Alliance of Ireland held a round table meeting on November 3rd 2014 with an aim to strategically address the palliative care needs of people with advancing neurological conditions. The following presentations were made at this meeting:   Read more >

Useful Information & Resources

USEFUL INFORMATION BMJ Blog "When Parkinson's Disease meets Dementia: A Palliative Care Research Priority" Here The British Motor Neurone Disease Association (MNDA) has published a new guide “End of life. A guide for people with motor neurone disease” which is a “comprehensive and candid guide to help people with MND to plan ahead and communicate […] Read more >

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