I have an advancing neurological illness
Over 700,000 people In Ireland are affected by neurological illnesses affecting the brain and spinal cord. People living with advancing neurological illnesses may wish to plan ahead for the care they would like to receive as their illness progresses. In particular they may want to consider their palliative care needs and end-of-life preferences. The information on this page should assist in that process.
I have an advancing neurological illness. What is Palliative Care?
Palliative care is an approach to care that focuses on promoting comfort through relieving pain and other symptoms. Read more>>>
Who Can Benefit from Palliative Care?
Palliative care is appropriate at any stage for those living with a life limiting illness including those with advancing neurological illnesses, and can be provided together with curative treatment. Read more>>>
Steps on the Journey with advancing neurological conditions
(Click to enlarge)
Each journey is unique to the individual concerned.
Types of Palliative Care
Palliative care is often described as having three ascending levels of specialisation as depicted in this picture
Read more >>>
Things to think about on the journey with an advancing neurological illness:
- I’ve just been diagnosed with and advancing neurological condition
- What if I have a fall
- I’m having a stay in hospital
- I have an infection
- I’m finding it difficult to swallow
- I’m going to avail of respite care
- Preparing for the end
How to Access Specialist Palliative Care
Access to palliative care services varies across the country. A suggestion that the Specialist Palliative Care team may be helpful to address issues presenting in a person’s care may come from many sources Read more>>>
Advanced Care Planning
Receiving a diagnosis of a progressive neurological illness is often quite traumatic and may highlight issues and concerns for people. This may also occur at different points throughout the illness. Concerns may arise in relation to a person’s current situation or they may require assurance about their future care or what will happen to them should they become very unwell. Read more>>>