I have an advancing neurological illness

Over 700,000 people In Ireland are affected by neurological illnesses affecting the brain and spinal cord. People living with advancing neurological illnesses may wish to plan ahead for the care they would like to receive as their illness progresses. In particular they may want to consider their palliative care needs and end-of-life preferences. The information on this page should assist in that process.

I have an advancing neurological illness. What is Palliative Care?

Palliative care is an approach to care that focuses on promoting comfort through relieving pain and other symptoms. Read more>>>

Who Can Benefit from Palliative Care?

Palliative care is appropriate at any stage for those living with a life limiting  illness  including those with advancing neurological illnesses, and can be provided together with curative treatment. Read more>>>

Steps on the Journey with advancing neurological conditions 

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Advancing Nrurological conditions patient journey
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Each journey is unique to the individual concerned.

Types of Palliative Care

Palliative care is often described as having three ascending levels of specialisation as depicted in this picture

Levels of palliative care

 

Read more >>>

 

Things to think about on the journey with an advancing neurological illness:

 How to Access Specialist Palliative Care

Access to palliative care services varies across the country. A suggestion that the Specialist Palliative Care team may be helpful to address issues presenting in a person’s care may come from many sources Read more>>>

Advanced Care Planning

Receiving a diagnosis of a progressive neurological illness is often quite traumatic and may highlight issues and concerns for people. This may also occur at different points throughout the illness. Concerns may arise in relation to a person’s current situation or they may require assurance about their future care or what will happen to them should they become very unwell. Read more>>>

 

Other Useful Resources >>>

 

 

MORE ON THIS SECTION:

What is Palliative Care?

Palliative care is an approach to care focusing on promoting comfort through relieving pain and other symptoms. The aim of palliative care is to enhance the quality of life of those living with life limiting progressive conditions and their families. Palliative care uses a team approach to address the needs of patients and their families. […] Read more >

Levels of Palliative Care

Palliative care is often described in terms of three ascending levels of specialisation.  Level one – palliative care approach: Palliative care principles should be practiced by all health care professionals. The palliative care approach should be a core skill of every clinician at hospital and community level. Many patients with progressive and advanced disease will have their […] Read more >

Who Can Benefit from Palliative Care?

Palliative care is appropriate at any stage for those living with a life limiting  illness  including those with advancing neurological illnesses, and can be provided together with curative treatment. It is not designed to replace treatment; rather it complements the treatment received.  The diagram below indicates some elements of the journey that people may encounter […] Read more >

How to Access Specialist Palliative Care

Access to palliative care services varies across the country. Many people involved in a patient’s care may suggest that referral to Specialist Palliative Care team may be helpful, these include: Patient Family members Doctors Nurses Allied Health Professionals Social worker Member of Clergy Following discussion with the person living with the illness and/or their carers […] Read more >

Advanced Care Planning

Receiving a diagnosis of a neurological illness is quite traumatic and may highlight different issues and concerns for people at different points throughout the illness. Concerns may arise about a person’s current situation or they may require assurance about future care or what will happen to them if they deteriorate.  What is Advance Care Planning  Advance […] Read more >

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