Advanced Care Planning

Receiving a diagnosis of a neurological illness is quite traumatic and may highlight different issues and concerns for people at different points throughout the illness. Concerns may arise about a person’s current situation or they may require assurance about future care or what will happen to them if they deteriorate. 

What is Advance Care Planning 

Advance care planning is usually carried out in consultation with the person living with the illness, their medical team and family members. It is important the medical team and family members understand and respect the person’s end-of-life care wishes and preferences. Advance care plans can be useful if the situation arises that a person is no longer able to make decisions or communicate their wishes due to cognitive decline. Advance care plans outline the treatments a person may wish to receive or not receive in the future. Issues that may be addressed by advance care planning include but are not limited to;             

  • Pain management
  • Bowel management
  • Urinary tract disorders
  • Artificial hydration and nutrition
  • What happens if ability to communicate diminishes
  • Agitation and restlessness
  • Do Not Resuscitate orders

Talking about advance care planning 

Issues raised here can be discussed with a doctor, nurse or other member of your medical team. We have developed the 'Think Ahead' tool to help patients and families talk about Advance Care Planning,  it is available on the Think Ahead website HERE  

Back to the Top