Other resources

Think Ahead Initiative

Think Ahead is a public awareness initiative aimed at guiding people in discussing and recording their care preferences while able to speak for themselves. It comprises a detailed form divided into six sections: (1) Key Information (2) Care Preferences (3) Legal Matters (4) Financial Matters (5) When I Die and (6) Sharing Information.

Think Ahead encourages people to think about important issues; talk to others about them (family, GP, etc.); and tell key people in their lives about their decisions and preferences in relation to these matters.

The Think Ahead form, with related guidance and resources, can be downloaded from www.thinkahead.ie

Toolbox Talks Information leaflets:

A variety of quick reference leaflets are available through the link below and are useful to health professionals facing challenges with regard to providing end of life care.

http://hospicefoundation.ie/education-training/final-journeys/prompts-for-good-practice

End of Life Care Map:

The End of Life Care Map is designed for staff involved in any aspect of end-of-life care. It provides practical advice and prompts along the end-of-life journey from diagnosing dying to care after death.

http://hospicefoundation.ie/wp-content/uploads/2013/04/End-of-Life-Care-Map-2013-version.pdf

MS Ireland

Multiple Sclerosis Ireland is the only national organization providing information, support and advocacy services to the MS community. They work with people with MS, their families and carers’, health professionals, students and others interested in or concerned about MS. Through their website, MS Ireland has outlined some useful information that all those with a neurological condition and their carers may benefit from when making medical and end-of-life decisions. This information can be accessed through the following pages:

www.ms-society.ie/pages/living-with-ms/carers-/life-planning

www.ms-society.ie/pages/living-with-ms/carers-/palliative-care

www.ms-society.ie/pages/living-with-ms/carers-/end-of-life-care-giving

Irish Motor Neurone Disease Association:

The IMNDA is dedicated to providing care for people with MND, their carers and families as well as supporting research into the disease. The website can be accessed through the following link:

 http://www.imnda.ie 

 

Neurological Alliance of Ireland:

NAI is the national umbrella body representing over thirty not for profit organisations working with people with neurological conditions and their families. The website can be accessed through the following link.

http://www.nai.ie/

Parkinson’s Association of Ireland:

The Parkinson’s Associations aim is to assist people with Parkinson's, their families and carers, health professionals and interested others, by offering support, a listening ear, and information on any aspect of living with Parkinson's. They also initiate and fund research into Parkinson's disease, its causes and affects. Their page can be accessed through the following link.

http://www.parkinsons.ie/index

Huntington's Disease Association of Ireland:

Huntington’s Disease Association of Ireland is a national voluntary organisation which provides information and support to people with Huntington’s Disease, those at risk, carers, family members and health and social care professionals.

The website can be accessed through the following link.

 http://www.huntingtons.ie/

Progressive Supranuclear Palsy:

Information about PSP can be accessed through the following link.

http://www.parkinsons.ie/Atypical_PSP

Brain Tumour Ireland:

Brain Tumour Ireland is a national voluntary organisation that provides information guidance and comfort for those affected by brain tumours. Information about palliative care can be accessed through the following link.

http://braintumourireland.com/bti/index.php/support/palliativeend-of-life-support/

The Carers Association:

The Carers Association is Ireland's national voluntary organization for and of family carers. As an organization it lobbies and advocates on behalf of carers. Some of the services that are offered include support groups and counseling.

http://carersireland.com/index.php

All Ireland Institute of Hospice and Palliative Care:

The All Ireland Institute of Hospice and Palliative Care (AIIHPC), is an all island organization, comprised of a Consortium of eight health agencies and four universities, all working to improve the experience of supportive, palliative and end-of-life care on the island of Ireland, by enhancing the capacity to develop knowledge, promote learning, influence policy and shape practice. The aim is to secure best care for those approaching end-of-life.

http://aiihpc.org/

Citizens Information:

The Citizens Information Board is a statutory body which supports the provision of information, advice and advocacy on a broad range of public and social services in Ireland.

http://www.citizensinformation.ie

The Irish Hospice Foundation:

The Irish Hospice Foundation (IHF) is a national charity dedicated to all matters relating to dying, death and bereavement in Ireland.

http://hospicefoundation.ie

There is a link from the Irish Hospice Foundation website to carers.ie which was developed to provide practical information and guidance for people who are caring for someone who has been diagnosed with a life-threatening illness.

http://www.carers.ie

International websites:

www.hospicecare.org
The International Association for Hospice and Palliative Care

www.ncpc.org.uk
The National Council for Palliative Care (Great Britain)

In particular the National Service Framework for Long term Conditions  (DOH UK, 2005).

www.nhpco.org–

The National Hospice and Palliative Care Organization (USA)

www.chpca.net
The Canadian Hospice and Palliative Care Association – website in French and English

www.caringinfo.org
A wide range of free resources about end of life care (USA)

www.ncpc.org.uk
The National Council for Palliative Care (Great Britain)

 

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