Guides & Publications
A number of external organisations are involved in producing research and publishing information relating to palliative care. Among their publications are guides providing relevant information and advice for carers and the people for whom they care, and for people who have been recently bereaved.
Listed below are useful resources and publications from other organisations.
Care Alliance Ireland is a national network of voluntary organisations that work to support family carers. Their publications include research reports, organisation newsletters, fact sheets and overview reports. Also available are information resources aimed at providing practical support and information for carers.
The Irish Cancer Society publishes a range of information leaflets for people with cancer and their carers/family members, including information on how family / friends who are caring for someone who is facing death should look after themselves.
The Irish Red Cross has published a Carers’ Handbook providing practical information for carers, with comprehensive advice on all aspects of caring, including personal care skills, comfort, mobility and nutrition. The chapter on Palliative Care includes the following topics: facing death, stages of grief, practical care, towards end of life, after death and registering death (an extract of which is available here).
Carers’ Sanctuary is a free, quarterly online magazine aimed at family carers.
The Citizens Information Board has published a guide supporting individuals who have been bereaved. The guide provides an overview of matters to be dealt with following a death, and the legal and financial issues that may arise.
Marie Curie Cancer Care is a UK charity dedicated to the care of people with terminal illnesses. Available on the website are guides and resources for patients, carers and families of people with terminal illnesses to include this report on the hidden costs of caring.
The European Association for Palliative Care is a non-governmental organisation promoting palliative care. Available on their website are numerous research publications providing international coverage on palliative care.