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Posts Tagged ‘PalliativeCare’

Welcoming “Finite Lives” Report

Posted on: May 19th, 2017

The Irish Hospice Foundation welcomes the newly published report Finite Lives which examines State Services around dying, death and bereavement.

         
  Angela Edghill, Irish Hospice Foundation, Advocacy and Public Engagement Manager said the ground breaking report is the first of its kind and proves that dying is everyone’s business. Ms Edghill added: “It provides great evidence for a more coordinated and strategic approach to dying, death and bereavement by all of the agencies and Departments of State. Only good can come of this report since the issues it examines affect us all, without exception - but only if the State acts on Senator O'Donnell's sensible, practical and reasonable recommendations.”
 
The report makes 16 key recommendations including the promotion of the Irish Hospice Foundation’s Think Ahead planning tool. The purpose of the Think Ahead document is to guide members of the public in discussing and recording their preferences in the event of emergency, serious illness or death.
Further information is available on www.thinkahead.ie Finite Lives by Senator Marie-Louise O’Donnell was launched by An Taoiseach Enda Kenny this afternoon (Wednesday, 17 May) at Government Buildings.  

The report is available here for download.

 

New Survey highlights need for more talk about palliative care

Posted on: June 20th, 2016

Half of palliative care users across the Island of Ireland feel frustrated or helpless

Lets talk about palliative care report A survey by the All Ireland Institute for Hospice & Palliative Care shows that we must encourage people to exercise personal choice through the timely provision of accessible and appropriate information on palliative and end of life care.” More than two thirds of palliative care users across Ireland have admitted that ‘planning for the future’ is their biggest worry. Half of the people who took part in the new All-Ireland said they felt frustrated or helpless. A further 51 per cent said their emotional and psychological needs were not met and 42 per cent wanted better co-ordination of care or treatment. The findings are contained in the Let’s Talk About Palliative Care Survey Report The survey was coordinated by the All Ireland Institute of Hospice and Palliative Care (AIIHPC). It asked people to talk about their positive or negative experiences of care.

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READ THE REPORT   >>>

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Palliative Care Week October 25 – 31

Posted on: October 19th, 2015

Quality Care - where it's needed, when it's needed

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  According to a recent study by the All Ireland Institute of Hospice & Palliative Care (AIIHPC) 68% of people with an incurable illness want to plan for their future care. Palliative Care Week which takes place from Oct 25 - 31 will highlight the benefit of a palliative approach in health and community care  settings. It will focus on the delivery of palliative care where it's needed and in the way it is needed for both patient and family. The core messages for the week will outline how Palliative Care;
  • Can be provided in many different settings; at home, in a nursing home, in hospital, or in a hospice, depending on a person’s needs and preferences
  • Aims to achieve the best possible quality of life for people with serious illness
  • Is beneficial for anyone with a non-curable  illness, regardless of age or condition
  • May be delivered for a number of years, not just the weeks and days at the end of life
  • Supports family, friends and carers both during an illness and afterwards

Find Out More

The week will be coordinated by AIIHPC and more information is available HERE You can also follow the conversation about Palliative Care Week on the hashtag #pallcareweek   

Report shows chance of dying at home dictated by where you live in Ireland

Posted on: December 4th, 2014

Latest Irish Hospice Foundation perspectives report

The latest Irish Hospice Foundation report shows the chances of dying at home or in hospital are dictated by where you live in Ireland
  • People in Dublin are much less likely to die at home compared to those in Donegal
  • IHF calls for health service quality indicators on place of care and death
A new research report commissioned by the Irish Hospice Foundation (IHF) reveals that the chances of dying at home or in hospital are dictated by where you live in Ireland.
Place of death Infographic

Place of death infographic

Where do Irish People die?

The research highlights the wide difference in home deaths across the country, with only 18% of people in Dublin dying at home compared to 34% in Donegal. This is despite the findings of a recent national survey showing that 74% of Irish people want to die at home, up from 66% in 2004. The report, the third in the IHF Perspective Series, was launched today, (Thursday December 4th), by oncologist and Independent Senator, Professor John Crown. Titled “Enabling More People to Die at Home; Making the Case for Quality Indicators as Drivers for Change on Place of Care and Place of Death in Ireland” it sets out the case for key quality indicators on place of care and death, and calls for health policy to focus on providing more care in the home and communities. The report suggests that people’s preference to be cared for and die at home is not being facilitated by the health system, arguing that quality indicators are one way to monitor how well health policy is being implemented. “If it is possible for 34% of deaths to take place at home in Donegal why is it that about half of that proportion die at home in Dublin?” it asks. The report, supported by a paper written by social and economic research consultant Dr. Kieran McKeown, draws on data published by the CSO which shows people living in Donegal are more likely to die at home (34%), followed by Kilkenny and Kerry, (33%), Mayo, (32%), and Leitrim and Wexford, (31%). At the other end of the scale only 18% of people in Dublin die at home, followed by Sligo next, (26%), and Roscommon and Galway, (26%), which is the national average.

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Irish Hospice Foundation and Neurological Alliance of Ireland look at palliative care needs of people with advancing neurological illness

Posted on: March 11th, 2014

NAI Logo

The Irish Hospice Foundation with the Neurological Alliance of Ireland has commenced a project that is looking at the palliative care needs of people with an advancing neurological illness from the perspective of Neurological Alliance of Ireland member organisations. 

Palliative care needs 

This project aims to establish the palliative care needs of people with advancing neurological disease and identify the required responses to these needs. They will draw perspectives from Neurological Alliance of Ireland member organizations which include:

 

  • Multiple Sclerosis Ireland
  • Parkinsons Association of Ireland
  • Irish Motor Neuron Disease Association
  • Huntingtons Disease Association of Ireland
  • Progressive Supranuclear Palsey Association
  • Brain Tumour Ireland
  • Cheshire Ireland 

This week (March 10th to 15th) marks Brain Awareness Week, find out more about events and activities to mark the week HERE      

More information on the Irish Hospice Foundation's work on extending Palliative Care to people with Advancing Neurological conditions is available HERE 

GRANT CALL 2014 NOW OPEN – DEVELOPMENT IN HOSPICE & PALLIATIVE CARE

Posted on: January 7th, 2014

The Irish Hospice Foundations grant scheme A is now open for 2014 applications.

This grant scheme is aimed at assisting development in palliative care. Capital development applications are excluded. Applicants should demonstrate rigour and sound evaluation in proposals and indicate where services would be developed. The scheme is open to clinicians, other professionals and/or managers in hospice/palliative care in Ireland. Research applications will not be accepted.

Full details are application forms are available HERE

 

 

THE IRISH HOSPICE FOUNDATION SEEKS CLARITY ABOUT SPECIALIST PALLIATIVE CARE BUDGET

Posted on: December 19th, 2013

The Irish Hospice Foundation (IHF) has written today to Tony O’Brien, Director General of the Health Service Executive seeking clarification that a budget for specialist palliative care will be unveiled in sectoral budgets published in January 2014.

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 While welcoming the HSE plan to provide €1m to support the phased opening of specialist palliative care beds in Blanchardstown, the IHF is concerned that there are currently 46 unopened hospice beds  that should be opened as a matter of urgency.   

Sharon Foley stated: “We believe it is essential that there is a detailed breakdown of all health spending particularly in what is spent by the State on specialist palliative care.  The IHF believes there should be a dedicated, trackable budget for palliative care in our health budget and an annual core budget for palliative care within each of the new HSE Directorates.   The 2014 budget for specialist palliative care should be maintained at the 2013 levels to prevent further fragmentation of the sector.”    

HSE Service Plan 2014 is available HERE