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Minister for Health commits to immediately progressing next steps of Children’s Palliative Care Programme

Posted on: February 16th, 2018
Minister for Health Simon Harris has committed to immediately progressing some of the next steps of the Children’s Palliative Care Programme following a meeting with a coalition of children’s palliative care service providers and consultants in paediatric palliative care including the Irish Hospice Foundation’s CEO Sharon Foley yesterday (Thursday 15 February 2018).

The coalition had highlighted their concerns over the slow progress of a number of key recommendations in the ‘Evaluation of the Children’s Palliative Care Programme’ report launched by the Minister in November 2016.  The priorities for progress included re-establishing a National Development Committee, the extension of the Clinical Nurse Co-ordinators Service for children with life-limiting illnesses, the development of clinical palliative care services in our children's hospitals and the need for an agreed roadmap for further development of priorities in children's palliative care.

Sharon Foley was joined by Dr. Mary Devins, Consultant Paediatrician with a Special Interest in Paediatric Palliative Medicine, Dr. Maeve O’Reilly, Palliative Care Consultant, St. James Hospital and St. Luke’s Hospital, Claire Quinn, Lecturer and Programme Director MHSc /PGD Health Sciences (Children’s Palliative/ Complex Care) at the School of Nursing and Midwifery, NUI Galway and CEO of the Jack and Jill Foundation, Hugo Jellet.

Following the meeting, Sharon Foley said: ‘We were very encouraged by our meeting with Minister Harris today and welcome his commitment to making immediate progress. He has agreed that a new interim National Development Committee (NDC) on Children’s Palliative Care will be put in place over the coming weeks with the full NDC committee established by the summer.  This new NDC is to agree a new set of national priorities by the Autumn. At the meeting, both the Minister and HSE agreed that both bereavement care and respite care for children nearing end of life  - both in and out of the home - are particular areas requiring joined up thinking and attention.’

‘We met today to discuss priorities in children's palliative care and the Minister heard directly from consultants in the area on the challenges facing them in the delivery of care to children requiring palliative care. The leadership to date shown by the clinicians, HSE and charities in this area is remarkable and needs to continue. The Irish Hospice Foundation will also continue to support the Children’s Palliative Care programme in the most effective way possible. This year, we will fund the recently appointed consultant in paediatric palliative care in Temple Street, a new national programme manager for children's palliative care and supervision for existing outreach nurses.’

‘This is a prime opportunity to reignite the energy and enthusiasm which surrounded the implementation of the first national policy on children’s palliative care and I look forward to continuing to work with the Minister, his department and the other key providers of children’s palliative care to help deliver the next phase of Children’s Palliative Care. Nearly 4000 children are living with life-limiting illnesses in Ireland today and many have definitive palliative and end of life care requirements. It is vital there is no further delay so these children and their families can get the care they both need and deserve.’

Remembering Ted Moynihan

Posted on: February 15th, 2018

Our CEO Sharon Foley, pictured with the late Ted Moynihan at the opening of the new Palliative Care In Patient Unit at University Hospital Kerry in 2017

Here at The Irish Hospice Foundation, we were very saddened to learn of the death of Ted Moynihan last week. The Tralee native was a founding member of Kerry Hospice Foundation and spent decades campaigning and fundraising for the introduction of palliative care services in Kerry. All of this hard work came to fruition last year, with the official opening of the new Palliative Care In Patient Unit at University Hospital Kerry. Our CEO Sharon Foley has been paying tribute to him: 'I remember Ted with such fondness. He was a true gentleman and a treasure to Kerry Hospice. I was invited along with all the hospice movement to join him at the opening of the new Palliative Care In Patient Unit at Kerry University Hospital last September. He took the time to ring me after to thank me for IHF support of Kerry Hospice. Afterwards we had the opportunity to arrange a lovely poem for him, personally and for Kerry hospice. But Ted was my friend too - he often rang me throughout my own illness as he was facing the same. For all his focus on Kerry, he wanted the best for people at the end of life. Every death matters and he gave his life to this cause. Ar Dheis Dé go raibh a Anam.' Our sincerest condolences to his family, friends and colleagues at this time.

Could You Be Our New Fundraising Executive?

Posted on: February 8th, 2018
Think you could be our new Fundraising Executive? This is a strategic role within the IHF Fundraising’s Department to ensure that the IHF continues to secure vital funding income from Trusts & Foundations available in Ireland, Europe & Overseas. This is a key part of our fundraising, with a focus on written applications for funding. The role also includes responsibility for our Community Fundraising, processing orders from our online shop and more. For full job specification & to apply; click here  

Explore the History of Hospice on the IHF Digital Archive

Posted on: February 6th, 2018

The People’s Charter on Dying, Death and Bereavement in Ireland

Posted on: January 24th, 2018
Thank you for helping us create an Irish charter on death, dying and bereavement in Ireland
At the Irish Hospice Foundation, we believe achieving excellence in end-of-life care is about supporting each person to live as well as possible to the end of their life so they can die with dignity and humanity and so those left behind can grieve well.
In 2016, we remembered Ireland’s achievements over the past 100 years. At that time we asked you, in the spirit of the national declaration to ‘remember, reflect and re-imagine’, to remember and reflect on your experiences of death and bereavement and re-imagine what it make take to facilitate a good death. For us all there will come a time when we will need care through illness, at the end of life and in bereavement. It’s important to understand how people look at death and dying so we can make sure correct supports are in place. You were able to tell us this based on your experiences, knowledge, hopes and fears. We found out what Irish people think is required for a good death and grieving.
Please click here to read  The Peoples's Charter on Dying, Death & Bereavement in Ireland Thank you for your support.
     
Joe - A Survey Participant
“When I was 20 my Mum died. There were 10 of us. We were our own support, friends didn’t understand. We expected the whole world to stop. It didn’t, but it changed forever”

Booking now open: Workshops on Loss & Bereavement 2018

Posted on: January 16th, 2018
 

Do you work with bereaved? In 2018, the Irish Hospice Foundation will once again host a series of Workshops on Loss and Bereavement. These are for professionals and volunteers who are working with those who have experienced a major loss. Booking is essential. For the full list of workshops and booking details, click here

Join Paul & Evelyn Kimmage on our CSI: Cyle for Care this June

Posted on: January 10th, 2018
Sports journalist and former professional cyclist Paul Kimmage is calling on cycling enthusiasts nationwide to join him and his daughter Evelyn on the CSI: Cycle for Care in aid of the Irish Hospice Foundation (IHF) this June. The duo will lead the way, covering 600km across the stunning landscapes of Croatia, Slovenia and Italy in just 5 days. They will be pedalling for the IHF’s Nurses for Night Care service, which provides care to people in their own homes at the end of life right around the country. This is a fantastic way to challenge yourself and see the beautiful mountains and beaches of Croatia, Slovenia and Italy. Starting in Piran and staying in picturesque towns along the way to Trieste, you will be supported throughout your journey by the IHF team.  Flights, accommodation and full board are included and full details can be found here or by calling 01 6793188. Registration closes Friday 16 March. Read more here.

Happy New Year! Regular opening times apply.

Posted on: January 2nd, 2018

New Year New You

Posted on: December 22nd, 2017
 

It’s that time of year that we all start thinking of our new year’s resolutions.  Why not start the year by signing up to one of our charity challenges?

Our Cycle Challenge will take place from 23-30th June and for the first time we will be taking on three countries Croatia, Slovenia and Italy. Find out more HERE.

 

Our Camino Challenge will be taking place in September and our brochure will be available early in 2018. You can register your interest HERE and we will send you full details as soon as they are available.

 

National Summary of Patient Activity Data for Adult Specialist Palliative Care Services in The Republic of Ireland, 2012-2015

Posted on: December 20th, 2017
National Summary of Patient Activity Data for Adult Specialist Palliative Care Services in The Republic of Ireland, 2012-2015, sponsored by the Irish Hospice Foundation and the HSE has been published. This report presents collated data from the Specialist Palliative Care Minimum Data Set (MDS) from the years 2010-2015 and reflects a picture of the activity within the specialist palliative care services in community, day-care and inpatient units. Every service contributes to the Minimum Data Set and we are fortunate to have almost 100% compliance with regard to metric data submission. The work on the report was carried out in partnership with the HSE and a project steering group. For their insight, guidance and commitment to this initiative, we acknowledge the input and work of John Weafer, Researcher; Stephen Toft, Palliative Care Programme Officer, HSE; Stephen Higgins, Consultant in Palliative Medicine, Our Lady’s Hospice & Care Services & Tallaght Hospital; Marie Lynch, Head of Healthcare Programmes, Irish Hospice Foundation; Carol Murray, Head of Non-Clinical Support Services, Milford Care Centre; Eileen O’Leary, Non-Residential Services Manager, Cork and Kerry Community Health. We encourage you to read the data report and circulate to colleagues and partner organisations. Apologies if there is any double posting. The report will be made available on the HSE website (www.hse.ie )and available here to download http://hospicefoundation.ie/wp-content/uploads/2018/01/National-Survey-of-Patient-Activity.pdf