Archive for the ‘Latest News’ Category
Rosabel’s Rooms was established by parents Suzanne McClean and Gary Monroe in memory of their beloved daughter Rosabel Monroe, who died suddenly and unexpectedly in April 2017, aged sixteen months.
Rosabel’s Rooms in collaboration with The Irish Hospice Foundation, was launched on the 5th January 2018, on what would have been Rosabel’s 2nd birthday.
The project will develop the following three activities:
Through the Design & Dignity Programme at the Irish Hospice Foundation, this project will facilitate the development of family-friendly bereavement suites in hospital emergency departments around Ireland, which will provide comfort and dignity for families following the loss of a loved one.
Through our Room-to-Heal fund, this project will facilitate direct financial support to families, when a child dies in Ireland. This will help to accommodate taking time off work, paying for funeral costs etc.
Over time this project will work to ensure required therapeutic supports are made available for individuals impacted by child loss.
Sharon Foley CEO of the IHF Said: “We hope this partnership with Rosabel’s Rooms will give families sanctuary to be together in private at extremely difficult times. The essence of Design & Dignity is to convey a sense of reverence and respect for life, death and bereavement.”
For more information, email: email@example.com or click here
Thank you to everyone who has donated through the Rosabel's Rooms fundraising auction. For more details on this auction, and to make a bid, please click here
Design & Dignity is part of the Hospice Friendly Hospitals (HFH) Programme is an IHF initiative to ensure that palliative, end of life and bereavement care are central to the everyday business of hospitals. To date, the Design and Dignity Project has supported 34 projects around Ireland enabling hospitals to create relaxing spacious family rooms, inpatient suites and maternity bereavement suites and upgraded mortuaries into welcoming, respectful environments. For more information, click here
CHY 6830 - Registered Charity 20013554
A new booklet to help people with advancing neurological illnesses to plan for all aspects of their future was officially launched today (Tuesday 6 March) as part of National Brain Awareness Week. Planning for the Future: Information for People Who Have an Advancing Neurological Illness, an initiative of the Neurological Alliance of Ireland (NAI) and the Irish Hospice Foundation (IHF) was launched by Professor of Neurology at Trinity College Dublin, Orla Hardiman, at the Alex Hotel in Dublin. Read more here.
The Irish Hospice Foundation office will remain closed until this coming Monday 5 March. Please take care, the Red Weather Alert is in place until tomorrow (Fri 2 March) at 12pm.
Due to the severe weather warning now in place, the Irish Hospice Foundation is closed for business today (Wednesday 28 Feb) and tomorrow (Thursday 1 March). We will issue a further update on our opening hours as soon as we can. If you do have to travel, please take heed of the weather warnings in place across the country.
Dublin, Friday 23 February 2018 - In a reflection paper launched today, the Irish Hospice Foundation (IHF) applauds the commitment by the palliative care sector and all who contributed to the Minimum Data Set. In December 2017, the Irish Hospice Foundation in partnership with the HSE, published patient data for adults specialist palliative care (SPC) services for the first time. The publication, referred to as the Minimum Data Set (MDS) provided a clear baseline for services but also showed how much progress had been made between 2012 and 2015. This tracks the development of the delivery of specialist palliative care (SPC) in inpatient palliative care units and in the community. Commenting on the reflection Sharon Foley, CEO of the Irish Hospice Foundation said, “Gaining a clear picture of Irish specialist palliative care services benefits everyone. However, it is totally unacceptable for the people living in the Midlands to be denied the full range of end-of-life care available to the rest of the country and with no clear plans for inpatient beds, this needs to be urgently addressed.” To read more, click here. The IHF reflection paper on the National Summary of Patient Activity Data 2012-2015 is here. For a full copy of the MDS report click here.
Minister for Health commits to immediately progressing next steps of Children’s Palliative Care Programme
Minister for Health Simon Harris has committed to immediately progressing some of the next steps of the Children’s Palliative Care Programme following a meeting with a coalition of children’s palliative care service providers and consultants in paediatric palliative care including the Irish Hospice Foundation’s CEO Sharon Foley yesterday (Thursday 15 February 2018). The coalition had highlighted their concerns over the slow progress of a number of key recommendations in the ‘Evaluation of the Children’s Palliative Care Programme’ report launched by the Minister in November 2016. The priorities for progress included re-establishing a National Development Committee, the extension of the Clinical Nurse Co-ordinators Service for children with life-limiting illnesses, the development of clinical palliative care services in our children's hospitals and the need for an agreed roadmap for further development of priorities in children's palliative care. Sharon Foley was joined by Dr. Mary Devins, Consultant Paediatrician with a Special Interest in Paediatric Palliative Medicine, Dr. Maeve O’Reilly, Palliative Care Consultant, St. James Hospital and St. Luke’s Hospital, Claire Quinn, Lecturer and Programme Director MHSc /PGD Health Sciences (Children’s Palliative/ Complex Care) at the School of Nursing and Midwifery, NUI Galway and CEO of the Jack and Jill Foundation, Hugo Jellet. Following the meeting, Sharon Foley said: ‘We were very encouraged by our meeting with Minister Harris today and welcome his commitment to making immediate progress. He has agreed that a new interim National Development Committee (NDC) on Children’s Palliative Care will be put in place over the coming weeks with the full NDC committee established by the summer. This new NDC is to agree a new set of national priorities by the Autumn. At the meeting, both the Minister and HSE agreed that both bereavement care and respite care for children nearing end of life - both in and out of the home - are particular areas requiring joined up thinking and attention.’ ‘We met today to discuss priorities in children's palliative care and the Minister heard directly from consultants in the area on the challenges facing them in the delivery of care to children requiring palliative care. The leadership to date shown by the clinicians, HSE and charities in this area is remarkable and needs to continue. The Irish Hospice Foundation will also continue to support the Children’s Palliative Care programme in the most effective way possible. This year, we will fund the recently appointed consultant in paediatric palliative care in Temple Street, a new national programme manager for children's palliative care and supervision for existing outreach nurses.’ ‘This is a prime opportunity to reignite the energy and enthusiasm which surrounded the implementation of the first national policy on children’s palliative care and I look forward to continuing to work with the Minister, his department and the other key providers of children’s palliative care to help deliver the next phase of Children’s Palliative Care. Nearly 4000 children are living with life-limiting illnesses in Ireland today and many have definitive palliative and end of life care requirements. It is vital there is no further delay so these children and their families can get the care they both need and deserve.’
Here at The Irish Hospice Foundation, we were very saddened to learn of the death of Ted Moynihan last week. The Tralee native was a founding member of Kerry Hospice Foundation and spent decades campaigning and fundraising for the introduction of palliative care services in Kerry. All of this hard work came to fruition last year, with the official opening of the new Palliative Care In Patient Unit at University Hospital Kerry. Our CEO Sharon Foley has been paying tribute to him: 'I remember Ted with such fondness. He was a true gentleman and a treasure to Kerry Hospice. I was invited along with all the hospice movement to join him at the opening of the new Palliative Care In Patient Unit at Kerry University Hospital last September. He took the time to ring me after to thank me for IHF support of Kerry Hospice. Afterwards we had the opportunity to arrange a lovely poem for him, personally and for Kerry hospice. But Ted was my friend too - he often rang me throughout my own illness as he was facing the same. For all his focus on Kerry, he wanted the best for people at the end of life. Every death matters and he gave his life to this cause. Ar Dheis Dé go raibh a Anam.' Our sincerest condolences to his family, friends and colleagues at this time.
Think you could be our new Fundraising Executive? This is a strategic role within the IHF Fundraising’s Department to ensure that the IHF continues to secure vital funding income from Trusts & Foundations available in Ireland, Europe & Overseas. This is a key part of our fundraising, with a focus on written applications for funding. The role also includes responsibility for our Community Fundraising, processing orders from our online shop and more. For full job specification & to apply; click here