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Putting the house in order series gathers pace in Clare

Posted on: February 14th, 2019
The second seminar of County Clare’s innovative Putting the House in Order series takes place in Shannon this month.
The event, organised by the Clare Older People’s Council, takes place on Wednesday 27 February (11am-2pm) at Treacy’s Oakwood Hotel on the Airport Road. It will deal head on with what you wish to happen at the end of life and includes two workshops. The first is an introductory information session covering wills, enduring power of attorney, and other legal issues delivered by local Clare solicitor Sharon Cahir.
The second workshop delivered by Rebecca Lloyd, Public Engagement Officer with the Irish Hospice Foundation (IHF), asks participants to ‘Think Ahead’ using the IHF’s popular Think Ahead form.
The first seminar was held Ennis last month and was a resounding success with over 50 people attending, and many put on a waiting list.
Rebecca says: “Planning for what happens after you die or when, for some reason, you are no longer in a position to make or describe your plans for the future is a very difficult subject to contemplate. You may not have thought about – because, mostly, here in Ireland, we don’t like to. Or, it’s something you may be thinking about a lot and do want to talk about. Either way, please join us in Shannon, there is no pressure to do or say anything – Sharon and I will try and give you as much information to help you and answer any of your questions.”
Patricia Anne Moore, one of the Clare Older People’s Council organisers:  “We had a very inspirational day in Ennis with lots of sharing and advice for those present.  Through these seminars we want to enable participants to primarily receive good quality information about ‘putting their house in order’ and think about and discuss what would be important to them should they become ill, incapacitated or experience a medical emergency. It’s important for all of us to think about these things especially as we get older. It’s so you and those closest to you will know and understand what your wishes are. Many people enjoyed coming along and connecting with others – we are delighted with its success so far”
The series is with thanks to financial support from the Community Foundation for Ireland, and in association with the Irish Hospice Foundation.
Admission is free for this event in Shannon but booking is essential. Phone 065 6846240 or email hmoloney@clarecoco.ie
*Please note this is primarily an information and planning session; it is not about bereavement or bereavement counselling.
Putting The House in Order Series: remaining dates:
  • March     20th Kilrush Golf Club, Ennis Road, KILRUSH
  • April        10th Courthouse Gallery, ENNISTYMON
  • May         8th  Village Hall, OGONNELLOE
For further information please contact series organiser Patricia Anne Moore, Clare Older People’s Council. Email patriciaannemoore@gmail.com or call 086 173 0881

The Irish Premiere of ‘A Love That Never Dies’

Posted on: February 1st, 2019
Bereavement is the most human and predictable experience, it teaches us about our strengths as much as our pain, yet it can be an isolating and, for some, a debilitating experience. Every person who dies is a family member, friend and/or work colleague, thus bereavement affects large numbers of people in Ireland in many ways over many years, with very recently bereaved people representing up to 6% of our population.
Parental bereavement is different to other types of loss in its intensity and level of distress. As a way of raising awareness of bereavement, in particular, parental bereavement and encouraging conversation and support, the Irish Hospice Foundation are hosting the screening of the film ‘A Love that Never Dies’ with the support of the ODEON Point Square.
After the death of their son Josh in 2011, Jane Harris and Jimmy Edmonds made this documentary-style film. Josh was 22 when he died in a road accident while traveling in South East Asia. As a way of honoring his memory, Jane and Jimmy set off on their own road trip across the USA to find out why, in a world where death always makes front page news, real-life conversations about death, dying and bereavement are so problematic. Over a three month period, they met and filmed thirteen families all of whom shared remarkable stories of living beyond the death of their own child.
To date, the film has been shown all across the UK. The Irish screening takes place on Thursday 4th April in the ODEON Point Square, Point Village (Click here for venue details). The event is free but booking is required. Tickets will be available through www.eventbrite.ie from Friday 1st  March. A number of bereavement organizations, including bereaved parent organizations will be present on the night*. A Q&A session will be held after the screening with a panel consisting of the filmmakers and representatives from bereavement organizations across Ireland.
The event is open to the general public and organizations/people who provide support to those who are bereaved, including bereaved parents. Refreshments will be available in the iSense Lounge, ODEON Point Square after the Q&A. People will have an opportunity at that time to meet with others attending the event and bereavement organizations if they wish. Please visit our website www.bereaved.ie for our bereavement resources.
*Organisations represented on the night that have confirmed to date include Anam Cara, Bumbleance, Feileacain, FirstLight, HUGG, Irish Road Victims Association, Jack and Jill, LauraLynn, A Little Lifetime, The Irish Hospice Foundation. More organizations to be confirmed.

10th anniversary Cycle for Care: Join Paul & Evelyn Kimmage in Spain this June!

Posted on: January 15th, 2019

Sharon Foley, CEO of the Irish Hospice Foundation, pictured with sports journalist and former professional cyclist Paul Kimmage and his daughter Evelyn as they call on cycling enthusiasts nationwide to join him and his daughter on the 10th anniversary Cycle for Care in aid of the Irish Hospice Foundation (IHF) this June. The duo will lead the way across the stunning landscapes of the Costa Verde in Spain from 23-29 June Pic. Robbie Reynolds

€2 million the target as Paul Kimmage & Evelyn tackle special Cycle Challenge in aid of Irish Hospice Foundation  

Tuesday 15 January 2019
Sports journalist and former professional cyclist Paul Kimmage is calling on cycling enthusiasts nationwide to join him and his daughter Evelyn on the 10th anniversary Cycle for Care in aid of the Irish Hospice Foundation (IHF) this June.
The duo will lead the way across the stunning landscapes of the Costa Verde in Spain from 23-29 June. They will be pedalling for the IHF’s Nurses for Night Care service, which provides care to people in their own homes at the end of life right around the country and the Foundation’s Bereavement Support programme.
Speaking at today’s photo call, the Sunday Independent journalist said: “This will be my fifth Cycle Challenge in aid of the Nurses for Night Care service. On all my journeys with the IHF, I have heard many poignant and touching stories from my fellow cyclists about these inspirational nurses and the care they provide at the end of life. Nurses for Night Care allow people to spend their final days at home with their families. The gift of a peaceful and comfortable final chapter for our loved ones is one we all would love to give. In supporting the IHF Cycle Challenge by taking part or through raising funds, we help to make this possible for more and more families.”
“I am delighted my daughter Evelyn will be able to join me once again this year. We are encouraging cyclists of all abilities to join us on this stunning route through northern Spain. It’s a hugely rewarding experience,” said Paul.
The Kingspan-sponsored cycle has raised €1.85m for the IHF since it started in 2009 and the target in 2019 is to surpass the €2million euro mark. Over 4,000 families have been cared for by the Nurses for Night Care service with over 11,000 nights of care delivered since it was established.
IHF CEO Sharon Foley said: “Over the past ten years, this fantastic event has made a real difference to adults, children and families all over Ireland facing dying, death and bereavement.  Thanks to the incredible fundraising by all of our cyclists over the years, people with diseases like dementia, motor neurone disease, advanced respiratory disease, heart failure and end stage kidney disease are able to receive expert care and support at night in their own homes in their final days. Please join us on our 10th anniversary Cycle as we continue to strive to extend this support to more people and families nationwide.”
Team Kingspan have participated in all of the IHF Cycles over the years: “We are very proud to support this event and to help the IHF make a real difference to so many people and families all over Ireland. We have no doubt it’s going to be another huge success and hopefully we can pass the two million euro mark raised.”
This is a fantastic way to challenge yourself and see the stunning northern coastal region of Spain. Starting in Santallina del Mar, the route will take in beautiful coastal towns, beaches and the dramatic scenery of the Picos de Europe. Our final destination is the historical city of Santiago de Compostela. You will be supported throughout your journey by the IHF team.  Flights, accommodation and full board are included and full details can be found at http://www.hospicefoundation.ie/cycle or by calling 01 6793188. Registration closes Friday 16 March.

2019 Workshops on Loss and Bereavement

Posted on: November 23rd, 2018
Bereavement training is central to The Irish Hospice Foundation’s bereavement programme.  We strive to provide accessible, high quality training for professionals, volunteers and others with an interest in learning more about bereavement.
Hosted by the Bereavement Education & Resource Centre at The Irish Hospice Foundation, our workshops focus on a range of topics associated with bereavement, including children and adolescents, suicide and addiction.
Every year roughly 400 people take part in our workshops. 
Workshops are suitable for people requiring basic up to intermediate level bereavement theory for professional or volunteer development.
Our presenters represent a wide range of bereavement care practitioners from the voluntary and statutory sectors.
For more information & how to book, click here.

Rosabel’s Rooms- In partnership with the Irish Hospice Foundation

Posted on: March 8th, 2018

Rosabel’s Rooms was established by parents Suzanne McClean and Gary Monroe in memory of their beloved daughter Rosabel Monroe, who died suddenly and unexpectedly in April 2017, aged sixteen months.

Rosabel’s Rooms in collaboration with The Irish Hospice Foundation, was launched on the 5th January 2018, on what would have been Rosabel’s 2nd birthday.
The project will develop the following three activities:
  1. Through the Design & Dignity Programme at the Irish Hospice Foundation, this project will facilitate the development of family-friendly bereavement suites in hospital emergency departments around Ireland, which will provide comfort and dignity for families following the loss of a loved one.
  1. Through our Room-to-Heal fund, this project will facilitate direct financial support to families, when a child dies in Ireland. This will help to accommodate taking time off work, paying for funeral costs etc.
  1. Over time this project will work to ensure required therapeutic supports are made available for individuals impacted by child loss.
Sharon Foley CEO of the IHF Said: “We hope this partnership with Rosabel’s Rooms will give families sanctuary to be together in private at extremely difficult times. The essence of Design & Dignity is to convey a sense of reverence and respect for life, death and bereavement.”
For more information, email: rosabelsrooms@gmail.com or click here
For upcoming events, click here  To donate to Rosabel’s Rooms, click here

Rosabel's Room-to-Heal Fund: Applications now open

Rosabel's Room-to-Heal Fund is now open for applications. Part of the Rosabel’s Rooms project, it will provide financial support as an immediate response to the loss of a child. Click here for more information and eligibility for this pilot scheme. 
Design & Dignity is part of the Hospice Friendly Hospitals (HFH) Programme is an IHF initiative to ensure that palliative, end of life and bereavement care are central to the everyday business of hospitals. To date, the Design and Dignity Project has supported 34 projects around Ireland enabling hospitals to create relaxing spacious family rooms, inpatient suites and maternity bereavement suites and upgraded mortuaries into welcoming, respectful environments. For more information, click here
CHY 6830 - Registered Charity 20013554

CEOL Compassionate End of Life in Residential Care Centres – A Quality Improvement Approach

Posted on: November 23rd, 2017
Photographer - Paul Sherwood paul@sherwood.ie 087 230 9096

Irish Hospice Foundation CEOL ‘Compassionate End of Life’ programme launch

CEOL which stands for ‘Compassionate End of Life’ empowers all staff to provide the best possible end-of-life care for people living in residential care centres (RCC) in Ireland.


“All of us want assurance that the care our loved ones receive at end of life in residential care should be the best. The Irish Hospice Foundation (IHF) developed the Journey of Change programme to enable RCC (where 25% of people die each year) continually review and reflect the care they provide at end of life and introduce changes so that residents needs and their families are met in a truly holistic manner. We are very proud and grateful to the 100 RCC sites that participated in the first phase of the p rogram, and particularly those who engaged in the evaluation, which has informed the next phase CEOL” according to Marie Lynch, Head of Healthcare programmes, Irish Hospice Foundation.


This launch is the next step to introduce a national framework that will enable residential care centres keep a constant focused on providing compassion at end of life for residents, families and staff.


The Irish Hospice Foundation is pleased to announce our partnership with Beechfield Care Group, and we are delighted that Sarah McMickan CEO of Beechfield Care Group will formally launch the CEOL programme.  We have agreed to work together to achieve the recognition amongst providers and policy makers that end-of-life care is a key component of quality care in nursing homes, and will be advocating for required investment to ensure this takes place.


“As CEO of Beechfield Care Group, I am very aware of how important it is for the residential care sector to continually seek improvements from the broadest perspective in the delivery of person centred care as residents approach the end of their life.  For this reason I am delighted to launch the Irish Hospice Foundation CEOL programme; it will be very helpful to the sector to have a formal framework to support the delivery of compassionate care at end of life. This will become increasingly important with the change in Ireland’s demographics, and more people dying in residential care settings,” said Ms Mickan.


In Ireland there are currently over 28,000 people living in residential care, with approximately 7,000 people dying each year in these settings. As highlighted by the latest ERSI report (Projections of demand for healthcare in Ireland, 2015-2030) the number of people living in nursing homes is projected to increase by between 40 to 54 per cent by 2030.


Providing compassionate care for residents approaching the end of their life is a fundamental component of person-centred care.  The CEOL Programme enables staff to continuously review, reflect and improve the end-of-life care they provide for residents, their families and the staff themselves. The programme embeds a continuous quality improvement approach and is built around the needs of the individual, with the resident always at the heart of every decision.  Good end-of-life care is about being supported to live well until you die.


The pilot phase of the programme called ‘A Journey of Change’ ran from 2015 to 2016 in which over 100 RCC’s participated in. Dr Kathy Walsh (KW Research and Associates Ltd) conducted an independent evaluation of the Journey of Change programme and found that that it has the capacity to improve end-of-life care in participating residential care centres.  “Where all elements of the Programme have been implemented, there have been significant changes in practice in relation to End-of-Life Care (EOLC) planning, at time of death and after death, with staff less likely to want to transfer patients to hospital toward end of life.” (Dr Kathy Walsh, 2017).


The feedback from staff has been extremely positive, with staff reporting that their confidence and communication skills in relation to end-of-life care had improved as a result of their participation in the Programme. The Journey of Change Evaluation report also identified staff development in term of recognising and providing caring to a dying person, accessing specialist palliative care earlier, accessing GP services earlier, pain management and supporting the person to die in the care centre as per the wishes of the resident.


Staff from St Oliver Plunkett Community Hospital who have participated in the programme have reported ‘because we are more confident talking to our residents about death and end of life, we have a lot more conversations with them about what they want, like and dislike.  As a result, we know a lot more about what our residents want at end of life and we do our very best to give them what they want’.

Annual November Public Information Evening on Bereavement 2017

Posted on: November 9th, 2017
Our annual November public information evening on bereavement was held on 2nd November.  This annual event aims to provide information about grief and the range of supports available to bereaved people.  The evening opened with an introduction followed by a number of talks and video presentations.  Guest speaker Laura Kennedy (Columnist with The Irish Times, author of the personal reflection column ‘Leavetaking’) spoke on the theme ‘Living with Loss’.  At the event a number of voluntary bereavement support services and professional therapeutic services were represented (listed below).  The audience had an opportunity to visit these stands and be informed of what services they provide.  Admission is free to this annual November event which is open to all members of the public, in particular to those that have been bereaved.
  If you would like to be notified of this event in the future please contact Iris Murray Tel 01 679 3188 email iris.murray@hospicefoundation.ie
A Little Lifetime Foundation, Anam Cara Parental & Sibling Bereavement Support, Barnardos Children’s Bereavement Service, Beginning Experience, Bethany Bereavement Support Group, Citizens Information Service, Féileacáin (Stillbirth & Neonatal Death Association of Ireland), FirstLight, Irish Childhood Bereavement Network, Irish Hospice Foundation, Living Links, Miscarriage Association of Ireland, PCI Counselling Service, Pieta House Bereavement Services, Purple House Cancer Support, Rainbows Ireland, SAH (Support After Homicide), Turas Le Cheile Bereavement Support Service, Turning Point, Village Counselling Service

Have you sent your completed CHY3 Cert back to us? Clock is ticking…

Posted on: October 18th, 2017

A while ago we sent our generous supporters  a reminder letter about the charity tax back scheme and a CHY3 cert enclosed. If you received it, please don’t wait, return it today!

We will be submitting our claim to the Revenue Commissioners in the coming weeks so it’s vital your form comes in before that. It only takes a minute. We’ve made it as easy as possible. In just three quick steps you can release the full potential of your generous gift to us, so please complete, sign and return the form we sent you. It’s as simple as that. And it still won’t cost you a single cent more!

Thank you for your prompt response!

For more information on our Tax Back Campaign please click HERE

Death and Taxes in Spotlight at #Forum2017

Posted on: October 10th, 2017
October 10th 2017: Ireland’s first Charter on Dying, Death and Bereavement was launched today at the ‘Forum on End of Life’ conference organised by the Irish Hospice Foundation (IHF) in Dublin Castle.

‘The People’s Charter on Dying, Death and Bereavement in Ireland’ is solidly based on results of the IHF ‘Have Your Say’ survey where almost 2,600 people across Ireland shared their personal views last September on what they feel is needed for a good death and in bereavement. It is apt that death and taxes are in the spotlight today, because these are the only two certainties in life.

People want to live and die in an Ireland where death is talked about and not hidden away. People want to prepare for what lies ahead and get relief from pain, no matter the location or condition. People who are bereaved want space and time to grieve, talk and remember. These are samples of insightful and heartfelt survey findings.
Speaking from Dublin Castle, IHF CEO Sharon Foley said: “This important charter was formed by public opinion and gives us a powerful tool to bring to Government. The charter received overwhelming support today from 350 delegates. The people of Ireland want to have their say about end of life. Being treated with and maintaining dignity matters to people. Many described their fear of pain, with access to adequate pain relief being vital. Care, dignity, comfort and pain were recurring words used by people.  We will continue to feed and nurture this charter so it grows and is responsive to what people want. More people had their say today and we will continue to lead the discussion.”

Mrs Justice Catherine McGuinness Speaks Passionately

Mrs Justice Catherine McGuinness is Chair of the National Council of the Forum on End of Life in Ireland and spoke passionately at today’s forum to over 350 delegates.
“As citizens and as a society we need to break the taboo that surrounds death. We need to assert clearly that when it comes to end-of-life we need more rights than the last rites. We need to support each other to develop a greater sense of personal responsibility and put effective systems in place to enable people to act responsibly. Talking about death is a useful first step. Forum enables that conversation engaging in individual and collective futures.”  

Please credit Paul Sherwood
Pictured are David McCullagh RTE, who chaired the morning session, Sharon Foley, CEO, IHF, Professor Jenny Kitzinger, University of Cardiff and Mrs Justice Catherine McGuinness, at today’s launch of ‘The People’s Charter on Dying, Death and Bereavement in Ireland’

Advance Care Directive

Keynote speaker was Professor Jenny Kitzinger from Cardiff University who co-directs the ‘Coma and Disorders of Consciousness Research Centre’. Jenny spoke about challenges around how decisions are made when the patient has lost the ability to make choices for themselves. Jenny was speaking about her own research for the Welsh Government - and also speaking from the heart about her own personal experience with sister Polly Kitzinger. “There is a huge taboo, fear and superstition in talking about death and dying but unless we do talk about it, we risk leaving our family vulnerable to maltreatment. It’s estimated that one in three of us will face end of life unable to make decisions, this could be a car crash in your 20’s with devastating consequences or extreme dementia in your 80’s.
People should have the right to the best support and care possible at end of life. Many people may lose their capacity and ability to make their own decisions which is why we should think about it, talk about it and tell people about our choices and consider writing an advance care directive too,” concluded Professor Kitzinger.
Forum 2017 is the 5th biennial National Conference of the Forum on End of Life in Ireland. The Forum has been kindly supported by UPS Ireland and its employees.

Here’s the Have Your Say report 

‘The People’s Charter on Dying, Death and Bereavement in Ireland’ can be viewed here.


Living with Loss

Posted on: September 28th, 2017


Our next annual November public information evening on bereavement will be held on Thursday, 2nd November 2017.  This annual event aims to provide information about grief and the range of supports available to bereaved people.  The evening will open with an introduction followed by a number of talks and video presentations.  Guest speaker Laura Kennedy (Columnist with The Irish Times) will speak on the theme ‘Living with Loss’.  At the event a number of voluntary bereavement support services and Professional Therapeutic Services will be represented.  The audience will have an opportunity to visit these stands and be informed of what services they provide.  Admission is free to this annual November event which is open to all members of the public, in particular to those that have been bereaved.  If you have any queries please contact Iris Murray Tel 01 679 3188 email iris.murray@hospicefoundation.ie      

This public event is free to attend.  Bookings are not necessary.