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Bealtaine 2019: Tae, cáca agus comhrá bás

Posted on: April 17th, 2019

The Irish Hospice Foundation (IHF) in partnership with Creative Life at the Mercer Institute for Successful Ageing (MISA), St James’s Hospital will be serving up tea, cake and conversations of death at the Bealtaine Festival next month.
Comhrá Bás, Cáca agus Cupán will be hosted at MISA, St. James’s Hospital on Thursday 9 May from 12-2pm as part of the Age & Opportunity Bealtaine Festival which celebrates arts and creativity as we age.
Open to the public, the IHF is encouraging people to come along; to drink tea, eat cake and take some time to think, talk and tell each other what really matters to us at the end of life.
Rebecca Lloyd is Public Engagement Officer with the IHF. She says: “Talking about death and dying is rarely easy but when we consider that whatever stage of life we are at, death is usually with us in one way or another – it is perhaps something we should think about more often. Thinking and talking together in a safe space about death is an important and often overlooked part of a healthy society. Talking gives us opportunity to share our wisdom and our worries, and perhaps do some planning for our individual and collective futures.”
This is a free event. Spaces are limited – booking required. Reserve your place here

 

New website to support families grieving the loss of a baby

Posted on: April 15th, 2019

Riona Cotter, HSE Programme Manager, Implementation Group for the National Standards for Bereavement Care Following Pregnancy Loss and Perinatal Death; Dr Keelin O’Donoghue, Consultant Obstetrician at Cork University Maternity Hospital and Principal Investigator at INFANT

INFANT Centre at University College Cork, in partnership with the Irish Hospice Foundation, today launched pregnancyandinfantloss.ie, a first of its kind website for Ireland.
A valuable resource for parents who experience pregnancy loss or perinatal death, the website provides accurate and accessible information on a sensitive and often stigmatised subject, shares the latest research into the causes of baby loss, promotes emotional well-being, and offers details on how to access the appropriate support services.
“The website is a step forward in our commitment to consistent quality care for parents, as well as education and support for maternity staff while raising awareness of pregnancy loss and recognising its wide impact,” said Dr Keelin O’Donoghue, Consultant Obstetrician at Cork University Maternity Hospital and Principal Investigator at INFANT, Ireland’s only dedicated perinatal research centre.
Dr O’Donoghue and her team at INFANT, UCC, are leading investigations into the causes of pregnancy loss and perinatal death.
Supported by funding from the Irish Hospice Foundation, the website is an initiative of the Implementation Group for the National Standards for Bereavement Care Following Pregnancy Loss and Perinatal Death. The programme of implementation of the Standards was led by Dr O’Donoghue and HSE Programme Manager Riona Cotter.
The Standards, launched in August 2016, defined the care parents and families should receive following a pregnancy loss or perinatal death in all Irish maternity hospitals.
“This is an example of the excellent resources available through the INFANT centre at UCC that have a real-world impact and will make a difference to grieving parents and families,” commented INFANT Director, Professor Geraldine Boylan.
Irish Hospice Foundation CEO Sharon Foley acknowledged the impact that pregnancy loss and infant death has on families in Ireland.
“The IHF is very proud to support the new national pregnancy loss website. The loss of a child is devastating to any parent. Grieving parents should be able to access sensitive and consistent bereavement care at every stage of their journey and in every location throughout Ireland. Maternity hospitals play a vital role in supporting parents whose child dies following pregnancy and post birth. It is vital we support staff with tools and information which will equip them to give this bereavement care to parents. This new website will play a major role, I believe, in providing vital information to parents and staff following pregnancy and perinatal death in our hospitals.”
Pregnancy loss is the most common complication of pregnancy.  The end of a pregnancy or the death of a baby through miscarriage, stillbirth, neonatal and infant death can have a devastating and long-lasting impact on the woman, her partner, her other children and her extended family.

Save the Date: FORUM 2019.

Posted on: April 10th, 2019

 

We are pleased to announce that our major conference – FORUM 2019 – will be held on Thursday 24th October 2019 in the Hibernia Conference Centre in Dublin Castle.  Online booking will be open on Wednesday 24th April.
This year’s theme is “Dying is everyone’s business” and we are thrilled that Dr. Kathryn Mannix, author of the best-selling book “With the End in Mind” has agreed to give our keynote address. 
As at previous Forum gatherings, there will be an exciting panel discussion, questions and answers from the audience, as well as workshops which will include developments in bereavement, exploring the key questions for healthcare arising from the Assisted Decision Making Capacity Act 2015 (ADMA), funerals past and present, nursing home issues and the ever popular (and newly-named) Café Conversation, Bás, Cáca agus Cupán Tae – (Death, cake and a cup of tea) – and much more!
We very much look forward to welcoming you to FORUM 2019.

C’mon the Camino this September!

Posted on: April 8th, 2019

 

Karl Henry wants you to make every step count for end-of-life and bereavement care this September by walking the Camino de Santiago in aid of the Irish Hospice Foundation (IHF).
The 2019 IHF Camino takes place from 15th-21st September. This year, participants will be embarking on The Finisterre Camino (118km) – five days of walking through the beautiful coastline and unspoilt landscape of Galicia in Spain. The Finisterre Camino is the only route that begins in the city of Santiago de Compostela and the goal of the journey is the legendary Cape Finisterre, once believed to be the world’s most westerly point.
Speaking at the recent Camino photo call, the fitness expert, radio/ TV broadcaster and author said: “I am delighted to be an ambassador for the IHF’s Camino Challenge this year. Walking the Camino is a wonderful way for anyone to enhance their personal fitness and wellness – and to really enjoy themselves while doing it! Also, just by taking part, you support the great work the IHF does in supporting those facing end of life and bereavement.”
The IHF is the only national charity dedicated to dying, death and bereavement in Ireland. 80 people die every day in Ireland and the IHF believes everyone has the right to be cared for and to die with dignity and respect in their care setting of choice. Its mission is to strive for the best end-of-life and bereavement care for all.
Sharon Foley, CEO of the IHF, was among the participants on the 2018 IHF Camino. Speaking today, she said: “By joining us on the IHF Camino, you will be embarking on a personal challenge but through our own efforts, you will also be supporting people nationwide who are facing death and bereavement. Our vision at the IHF is that no one should face these difficult times without the care and support they need.”
“I had such a wonderful experience last year. There was plenty of time for chats and plenty of time for reflection. Everyone is on their own journey for their own reasons -their own challenges and milestones. The Camino welcomes all. I would tell anyone thinking of doing it to sign up now – you won’t regret it.”
If you want more information about taking on the IHF Camino go here or contact Louise today: louise.mccarron@hospicefoundation.ie or 01 679 3188.

Support our Summer Raffle 2019 and help more people die at home

Posted on: March 25th, 2019

Postgraduate Courses: Apply Now!

Posted on: March 7th, 2019

MSc Bereavement Studies students

 

We currently offer two part time postgraduate courses in Bereavement and Loss.
Our courses are delivered in partnership with the Royal College of Surgeons Ireland (RCSI) and aimed at professionals whose work brings them into contact with bereavement and loss.
Applications are open now and will be accepted until May 2019.

Penultimate Putting the house in order seminar coming up in Clare

Posted on: February 14th, 2019

 

The penultimate seminar of County Clare’s innovative Putting the House in Order series takes place in Ennistymon next week.
The event, organised by the Clare Older People’s Council, takes place on Wednesday 10 April (11am-2pm) at the Courthouse Gallery. It will deal head on with what you wish to happen at the end of life and includes two workshops. The first is an introductory information session covering wills, enduring power of attorney, and other legal issues delivered by local Clare solicitor Sharon Cahir.
The second workshop delivered by Rebecca Lloyd, Public Engagement Officer with the Irish Hospice Foundation (IHF), asks participants to ‘Think Ahead’ using the IHF’s popular Think Ahead form.
Three seminars have already been held in Ennis, Shannon and Kilrush with over 170 people attending. 
Rebecca says: “Planning for what happens after you die or when, for some reason, you are no longer in a position to make or describe your plans for the future is a very difficult subject to contemplate. You may not have thought about – because, mostly, here in Ireland, we don’t like to. Or, it’s something you may be thinking about a lot and do want to talk about. Either way, please join us in Shannon, there is no pressure to do or say anything – Sharon and I will try and give you as much information to help you and answer any of your questions.”
Patricia Anne Moore, one of the Clare Older People’s Council organisers:  “We had very inspirational days in Ennis, Shannon and Kilrush with lots of sharing and advice for those present.  Through these seminars we want to enable participants to primarily receive good quality information about ‘putting their house in order’ and think about and discuss what would be important to them should they become ill, incapacitated or experience a medical emergency. It’s important for all of us to think about these things especially as we get older. It’s so you and those closest to you will know and understand what your wishes are. Many people enjoyed coming along and connecting with others – we are delighted with its success so far”
The series is with thanks to financial support from the Community Foundation for Ireland, and in association with the Irish Hospice Foundation.
Admission is free for the events but booking is essential. Phone 065 6846240 or email hmoloney@clarecoco.ie
*Please note this is primarily an information and planning session; it is not about bereavement or bereavement counselling.

Putting The House in Order Series: remaining dates:

  • April        10th Courthouse Gallery, ENNISTYMON
  • May         8th  Village Hall, OGONNELLOE

The Irish Premiere of ‘A Love That Never Dies’

Posted on: February 1st, 2019
 
Parental bereavement is different to other types of loss in its intensity and level of distress. As a way of raising awareness of parental bereavement in Ireland and encouraging conversation and support, the Irish Hospice Foundation (IHF) is hosting the Irish premiere of the documentary, A Love that Never Dies, in Dublin on Thursday 4 April.
The film is by parents Jane Harris and Jimmy Edmonds, who founded The Good Grief Project, following the death of their son Josh in a road accident in Vietnam in 2011. Jane is a psychotherapist and Jimmy is a BAFTA award winning film maker, together they made A Love That Never Dies as a way of honouring their son’s memory.
The documentary follows them as they set off from the UK on their own road trip across the USA to find out why, in a world where death always makes front page news, real-life conversations about death, dying and bereavement are so problematic. Over a three month period, they met and filmed 13 families all of whom shared remarkable stories of living beyond the death of their own child.
Jane and Jimmy will attend the Dublin premiere on Thursday 4 April at the ODEON Point Square, Point Village.
Speaking ahead of the event, Jane says: “In making our film, our first and last impulse was to gather stories that would produce a documentary in which we could represent a version of what it means to grieve. These are personal stories that, collected together into one narrative, we hope provide insight to the fears and hopes of all bereaved parents (at least those in the western world).”
“This is important, both to substantiate the experience of people traumatised by the death of their child and also to help people who care for the bereaved either as professionals or as friends.”
The free screening is open to the general public and organisations/people that provide support to bereaved parents across Ireland. It will be followed by a Q&A with the filmmakers and representatives from Irish bereavement support organisations.
Head of Education & Bereavement at the IHF is Orla Keegan: “We are delighted and proud to host this film premiere; through its beautiful journey it gives some insight into what for most of us is an unimaginable loss. We invite bereaved parents who may have lost a child of any age to attend. We also hope however that this film gives neighbours, friends and all of us the permission to continue talking with families about a child who has died – their memory lasts and love never dies”.
Refreshments will be available in the iSense Lounge in the ODEON Point Square after the Q&A and people will have an opportunity to meet with others attending the event and bereavement organisations if they wish.
A very limited number of tickets are available. Register on Eventbrite here .
*Organisations represented on the night will include Anam Cara, Bumbleance, Féileacáin, FirstLight, HUGG, Irish Road Victims Association, Jack and Jill, LauraLynn, A Little Lifetime and the Irish Hospice Foundation.
For more info about the film: www.alovethatneverdiesfilm.com
Read more about the Good Grief Project here: www.thegoodgriefproject.co.uk
For our bereavement tools and resources, visit www.bereaved.ie

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This film will change the way the world see grief”
Scarlett Lewis, Mother of Sandy Hook Victim
“Tender and uplifting. Raw and real”     
Kathryn Mannix, author – With The End In Mind

2019 Workshops on Loss and Bereavement

Posted on: November 23rd, 2018

Bereavement training is central to The Irish Hospice Foundation’s bereavement programme.  We strive to provide accessible, high quality training for professionals, volunteers and others with an interest in learning more about bereavement.
Hosted by the Bereavement Education & Resource Centre at The Irish Hospice Foundation, our workshops focus on a range of topics associated with bereavement, including children and adolescents, suicide and addiction.
Every year roughly 400 people take part in our workshops. 
Workshops are suitable for people requiring basic up to intermediate level bereavement theory for professional or volunteer development.
Our presenters represent a wide range of bereavement care practitioners from the voluntary and statutory sectors.
For more information & how to book, click here.

CEOL Compassionate End of Life in Residential Care Centres – A Quality Improvement Approach

Posted on: November 23rd, 2017
Photographer - Paul Sherwood paul@sherwood.ie 087 230 9096

Irish Hospice Foundation CEOL ‘Compassionate End of Life’ programme launch

CEOL which stands for ‘Compassionate End of Life’ empowers all staff to provide the best possible end-of-life care for people living in residential care centres (RCC) in Ireland.

 

“All of us want assurance that the care our loved ones receive at end of life in residential care should be the best. The Irish Hospice Foundation (IHF) developed the Journey of Change programme to enable RCC (where 25% of people die each year) continually review and reflect the care they provide at end of life and introduce changes so that residents needs and their families are met in a truly holistic manner. We are very proud and grateful to the 100 RCC sites that participated in the first phase of the p rogram, and particularly those who engaged in the evaluation, which has informed the next phase CEOL” according to Marie Lynch, Head of Healthcare programmes, Irish Hospice Foundation.

 

This launch is the next step to introduce a national framework that will enable residential care centres keep a constant focused on providing compassion at end of life for residents, families and staff.

Partnership

The Irish Hospice Foundation is pleased to announce our partnership with Beechfield Care Group, and we are delighted that Sarah McMickan CEO of Beechfield Care Group will formally launch the CEOL programme.  We have agreed to work together to achieve the recognition amongst providers and policy makers that end-of-life care is a key component of quality care in nursing homes, and will be advocating for required investment to ensure this takes place.

 

“As CEO of Beechfield Care Group, I am very aware of how important it is for the residential care sector to continually seek improvements from the broadest perspective in the delivery of person centred care as residents approach the end of their life.  For this reason I am delighted to launch the Irish Hospice Foundation CEOL programme; it will be very helpful to the sector to have a formal framework to support the delivery of compassionate care at end of life. This will become increasingly important with the change in Ireland’s demographics, and more people dying in residential care settings,” said Ms Mickan.

 

In Ireland there are currently over 28,000 people living in residential care, with approximately 7,000 people dying each year in these settings. As highlighted by the latest ERSI report (Projections of demand for healthcare in Ireland, 2015-2030) the number of people living in nursing homes is projected to increase by between 40 to 54 per cent by 2030.

 

Providing compassionate care for residents approaching the end of their life is a fundamental component of person-centred care.  The CEOL Programme enables staff to continuously review, reflect and improve the end-of-life care they provide for residents, their families and the staff themselves. The programme embeds a continuous quality improvement approach and is built around the needs of the individual, with the resident always at the heart of every decision.  Good end-of-life care is about being supported to live well until you die.

Pilot

The pilot phase of the programme called ‘A Journey of Change’ ran from 2015 to 2016 in which over 100 RCC’s participated in. Dr Kathy Walsh (KW Research and Associates Ltd) conducted an independent evaluation of the Journey of Change programme and found that that it has the capacity to improve end-of-life care in participating residential care centres.  “Where all elements of the Programme have been implemented, there have been significant changes in practice in relation to End-of-Life Care (EOLC) planning, at time of death and after death, with staff less likely to want to transfer patients to hospital toward end of life.” (Dr Kathy Walsh, 2017).

 

The feedback from staff has been extremely positive, with staff reporting that their confidence and communication skills in relation to end-of-life care had improved as a result of their participation in the Programme. The Journey of Change Evaluation report also identified staff development in term of recognising and providing caring to a dying person, accessing specialist palliative care earlier, accessing GP services earlier, pain management and supporting the person to die in the care centre as per the wishes of the resident.

 

Staff from St Oliver Plunkett Community Hospital who have participated in the programme have reported ‘because we are more confident talking to our residents about death and end of life, we have a lot more conversations with them about what they want, like and dislike.  As a result, we know a lot more about what our residents want at end of life and we do our very best to give them what they want’.