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END-OF-LIFE CARE VISION LAUNCHED AT MOATE NURSING HOME

Posted on: June 12th, 2019

Residents and staff at Moate Nursing Home officially launched their end-of-life care vision.

The project is a central part of their work with CEOL (Compassionate End of Life), a programme run by the Irish Hospice Foundation (IHF).  CEOL is a quality improvement programme for residential care centres (RCCs) and nursing homes across Ireland. It enables staff to deliver compassionate, person-centred end-of-life care to residents, their family members and staff. CEOL provides a framework for staff to review, reflect on and enhance the end-of-life and bereavement care they provide.

Moate, which is part of Mowlam Healthcare, began working on CEOL in April 2018 when they participated in the first of three programme workshops. It was evident from the beginning there was a very person-centred approach to care in Moate Nursing Home and CEOL presented an opportunity for staff to develop this further with an even more focussed approach to end-of-life care. 

Director of Nursing, Kay Kennedy was instrumental in ensuring CEOL was delivered in the Westmeath nursing home along with Moate CEOL coordinators Jaya Ninan and Caroline Sheehan. The entire Moate CEOL Group was keen, from the start, that the residents would be included in developing the end-of-life care vision. 

Jaya Ninan is the Clinical Nurse Manager in Moate: “We are very proud to be part of the national CEOL programme. Our CEOL group consists of a group of multi-disciplinary staff members. While we already had good end-of-life care practices in the nursing home supported by various policies and procedures, our participation in the programme has empowered us to further develop our skills to enhance our end-of life care. I would like to express my sincere thanks to Kay Kennedy and Mowlam management for being so supportive in implementing the programme. Also, I would like to express sincere gratitude to all the staff of Moate Nursing Home, the residents and relatives for being part of this journey of change.”

Kate Steele, CEOL National Development Manager “I would like to wish all the residents and staff in Moate Nursing Home the very best of luck today. To see how they have welcomed and embraced the programme is truly inspirational. The incredible work being delivered through their CEOL Group and all the staff in Moate nursing home is not only having a real impact on the quality of end-of-life care, but on all care for their residents. It has been an absolute pleasure working with Moate Nursing Home on the CEOL Programme and we look forward to working together in the future through our regional CEOL Network meetings.”

Every year over 7,500 people in Ireland die in nursing homes and residential care centres.CEOL, launched in 2017, embeds a continuous quality improvement approach in individual nursing homes and is built around the needs of the individual, with the resident always at the heart of every decision.  Good end-of-life care is about being supported to live well until you die.  

For more information about CEOL, go here.

Booking now open: FORUM 2019.

Posted on: April 24th, 2019

 

We are delighted to announce that booking for our major conference – FORUM 2019 – on Thursday 24th October 2019 in the Hibernia Conference Centre in Dublin Castle is now open. 
For more details & how to book, please go here.
This year’s theme is “Dying is everyone’s business” and we are thrilled that Dr. Kathryn Mannix, author of the best-selling book “With the End in Mind” has agreed to give our keynote address. 
As at previous Forum gatherings, there will be an exciting panel discussion, questions and answers from the audience, as well as workshops which will include developments in bereavement, exploring the key questions for healthcare arising from the Assisted Decision Making Capacity Act 2015 (ADMA), funerals past and present, nursing home issues and the ever popular (and newly-named) Café Conversation, Bás, Cáca agus Cupán Tae – (Death, cake and a cup of tea) – and much more!
We very much look forward to welcoming you to FORUM 2019.

C’mon the Camino this September!

Posted on: April 8th, 2019

 

Karl Henry wants you to make every step count for end-of-life and bereavement care this September by walking the Camino de Santiago in aid of the Irish Hospice Foundation (IHF).
The 2019 IHF Camino takes place from 15th-21st September. This year, participants will be embarking on The Finisterre Camino (118km) – five days of walking through the beautiful coastline and unspoilt landscape of Galicia in Spain. The Finisterre Camino is the only route that begins in the city of Santiago de Compostela and the goal of the journey is the legendary Cape Finisterre, once believed to be the world’s most westerly point.
Speaking at the recent Camino photo call, the fitness expert, radio/ TV broadcaster and author said: “I am delighted to be an ambassador for the IHF’s Camino Challenge this year. Walking the Camino is a wonderful way for anyone to enhance their personal fitness and wellness – and to really enjoy themselves while doing it! Also, just by taking part, you support the great work the IHF does in supporting those facing end of life and bereavement.”
The IHF is the only national charity dedicated to dying, death and bereavement in Ireland. 80 people die every day in Ireland and the IHF believes everyone has the right to be cared for and to die with dignity and respect in their care setting of choice. Its mission is to strive for the best end-of-life and bereavement care for all.
Sharon Foley, CEO of the IHF, was among the participants on the 2018 IHF Camino. Speaking today, she said: “By joining us on the IHF Camino, you will be embarking on a personal challenge but through our own efforts, you will also be supporting people nationwide who are facing death and bereavement. Our vision at the IHF is that no one should face these difficult times without the care and support they need.”
“I had such a wonderful experience last year. There was plenty of time for chats and plenty of time for reflection. Everyone is on their own journey for their own reasons -their own challenges and milestones. The Camino welcomes all. I would tell anyone thinking of doing it to sign up now – you won’t regret it.”
If you want more information about taking on the IHF Camino go here or contact Louise today: louise.mccarron@hospicefoundation.ie or 01 679 3188.

Support our Summer Raffle 2019 and help more people die at home

Posted on: March 25th, 2019

Rosabel’s Rooms- In partnership with the Irish Hospice Foundation

Posted on: March 8th, 2019

 

 

 

 

 

Rosabel’s Rooms was established by parents Suzanne McClean and Gary Monroe in memory of their beloved daughter Rosabel Monroe, who died suddenly and unexpectedly in April 2017, aged sixteen months.

Rosabel’s Rooms in collaboration with The Irish Hospice Foundation, was launched on the 5th January 2018, on what would have been Rosabel’s 2nd birthday.
The project will develop the following three activities:
  1. Through the Design & Dignity Programme at the Irish Hospice Foundation, this project will facilitate the development of family-friendly bereavement suites in hospital emergency departments around Ireland, which will provide comfort and dignity for families following the loss of a loved one.
  1. Through our Room-to-Heal fund, this project will facilitate direct financial support to families, when a child dies in Ireland. This will help to accommodate taking time off work, paying for funeral costs etc.
  1. Over time this project will work to ensure required therapeutic supports are made available for individuals impacted by child loss.
Sharon Foley CEO of the IHF Said: “We hope this partnership with Rosabel’s Rooms will give families sanctuary to be together in private at extremely difficult times. The essence of Design & Dignity is to convey a sense of reverence and respect for life, death and bereavement.”
For more information, email: rosabelsrooms@gmail.com or click here
For upcoming events, click here  To donate to Rosabel’s Rooms, click here

Rosabel’s Room-to-Heal Fund: Applications now open

Rosabel’s Room-to-Heal Fund is now open for applications. Part of the Rosabel’s Rooms project, it will provide financial support as an immediate response to the loss of a child. Click here for more information and eligibility for this pilot scheme. 
Design & Dignity is part of the Hospice Friendly Hospitals (HFH) Programme is an IHF initiative to ensure that palliative, end of life and bereavement care are central to the everyday business of hospitals. To date, the Design and Dignity Project has supported 34 projects around Ireland enabling hospitals to create relaxing spacious family rooms, inpatient suites and maternity bereavement suites and upgraded mortuaries into welcoming, respectful environments. For more information, click here
CHY 6830 – Registered Charity 20013554

The Irish Premiere of ‘A Love That Never Dies’

Posted on: February 1st, 2019
 
Parental bereavement is different to other types of loss in its intensity and level of distress. As a way of raising awareness of parental bereavement in Ireland and encouraging conversation and support, the Irish Hospice Foundation (IHF) is hosting the Irish premiere of the documentary, A Love that Never Dies, in Dublin on Thursday 4 April.
The film is by parents Jane Harris and Jimmy Edmonds, who founded The Good Grief Project, following the death of their son Josh in a road accident in Vietnam in 2011. Jane is a psychotherapist and Jimmy is a BAFTA award winning film maker, together they made A Love That Never Dies as a way of honouring their son’s memory.
The documentary follows them as they set off from the UK on their own road trip across the USA to find out why, in a world where death always makes front page news, real-life conversations about death, dying and bereavement are so problematic. Over a three month period, they met and filmed 13 families all of whom shared remarkable stories of living beyond the death of their own child.
Jane and Jimmy will attend the Dublin premiere on Thursday 4 April at the ODEON Point Square, Point Village.
Speaking ahead of the event, Jane says: “In making our film, our first and last impulse was to gather stories that would produce a documentary in which we could represent a version of what it means to grieve. These are personal stories that, collected together into one narrative, we hope provide insight to the fears and hopes of all bereaved parents (at least those in the western world).”
“This is important, both to substantiate the experience of people traumatised by the death of their child and also to help people who care for the bereaved either as professionals or as friends.”
The free screening is open to the general public and organisations/people that provide support to bereaved parents across Ireland. It will be followed by a Q&A with the filmmakers and representatives from Irish bereavement support organisations.
Head of Education & Bereavement at the IHF is Orla Keegan: “We are delighted and proud to host this film premiere; through its beautiful journey it gives some insight into what for most of us is an unimaginable loss. We invite bereaved parents who may have lost a child of any age to attend. We also hope however that this film gives neighbours, friends and all of us the permission to continue talking with families about a child who has died – their memory lasts and love never dies”.
Refreshments will be available in the iSense Lounge in the ODEON Point Square after the Q&A and people will have an opportunity to meet with others attending the event and bereavement organisations if they wish.
A very limited number of tickets are available. Register on Eventbrite here .
*Organisations represented on the night will include Anam Cara, Bumbleance, Féileacáin, FirstLight, HUGG, Irish Road Victims Association, Jack and Jill, LauraLynn, A Little Lifetime and the Irish Hospice Foundation.
For more info about the film: www.alovethatneverdiesfilm.com
Read more about the Good Grief Project here: www.thegoodgriefproject.co.uk
For our bereavement tools and resources, visit www.bereaved.ie

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This film will change the way the world see grief”
Scarlett Lewis, Mother of Sandy Hook Victim
“Tender and uplifting. Raw and real”     
Kathryn Mannix, author – With The End In Mind

2019 Workshops on Loss and Bereavement

Posted on: November 23rd, 2018

Bereavement training is central to The Irish Hospice Foundation’s bereavement programme.  We strive to provide accessible, high quality training for professionals, volunteers and others with an interest in learning more about bereavement.
Hosted by the Bereavement Education & Resource Centre at The Irish Hospice Foundation, our workshops focus on a range of topics associated with bereavement, including children and adolescents, suicide and addiction.
Every year roughly 400 people take part in our workshops. 
Workshops are suitable for people requiring basic up to intermediate level bereavement theory for professional or volunteer development.
Our presenters represent a wide range of bereavement care practitioners from the voluntary and statutory sectors.
For more information & how to book, click here.

CEOL Compassionate End of Life in Residential Care Centres – A Quality Improvement Approach

Posted on: November 23rd, 2017
Photographer - Paul Sherwood paul@sherwood.ie 087 230 9096

Irish Hospice Foundation CEOL ‘Compassionate End of Life’ programme launch

CEOL which stands for ‘Compassionate End of Life’ empowers all staff to provide the best possible end-of-life care for people living in residential care centres (RCC) in Ireland.

 

“All of us want assurance that the care our loved ones receive at end of life in residential care should be the best. The Irish Hospice Foundation (IHF) developed the Journey of Change programme to enable RCC (where 25% of people die each year) continually review and reflect the care they provide at end of life and introduce changes so that residents needs and their families are met in a truly holistic manner. We are very proud and grateful to the 100 RCC sites that participated in the first phase of the p rogram, and particularly those who engaged in the evaluation, which has informed the next phase CEOL” according to Marie Lynch, Head of Healthcare programmes, Irish Hospice Foundation.

 

This launch is the next step to introduce a national framework that will enable residential care centres keep a constant focused on providing compassion at end of life for residents, families and staff.

Partnership

The Irish Hospice Foundation is pleased to announce our partnership with Beechfield Care Group, and we are delighted that Sarah McMickan CEO of Beechfield Care Group will formally launch the CEOL programme.  We have agreed to work together to achieve the recognition amongst providers and policy makers that end-of-life care is a key component of quality care in nursing homes, and will be advocating for required investment to ensure this takes place.

 

“As CEO of Beechfield Care Group, I am very aware of how important it is for the residential care sector to continually seek improvements from the broadest perspective in the delivery of person centred care as residents approach the end of their life.  For this reason I am delighted to launch the Irish Hospice Foundation CEOL programme; it will be very helpful to the sector to have a formal framework to support the delivery of compassionate care at end of life. This will become increasingly important with the change in Ireland’s demographics, and more people dying in residential care settings,” said Ms Mickan.

 

In Ireland there are currently over 28,000 people living in residential care, with approximately 7,000 people dying each year in these settings. As highlighted by the latest ERSI report (Projections of demand for healthcare in Ireland, 2015-2030) the number of people living in nursing homes is projected to increase by between 40 to 54 per cent by 2030.

 

Providing compassionate care for residents approaching the end of their life is a fundamental component of person-centred care.  The CEOL Programme enables staff to continuously review, reflect and improve the end-of-life care they provide for residents, their families and the staff themselves. The programme embeds a continuous quality improvement approach and is built around the needs of the individual, with the resident always at the heart of every decision.  Good end-of-life care is about being supported to live well until you die.

Pilot

The pilot phase of the programme called ‘A Journey of Change’ ran from 2015 to 2016 in which over 100 RCC’s participated in. Dr Kathy Walsh (KW Research and Associates Ltd) conducted an independent evaluation of the Journey of Change programme and found that that it has the capacity to improve end-of-life care in participating residential care centres.  “Where all elements of the Programme have been implemented, there have been significant changes in practice in relation to End-of-Life Care (EOLC) planning, at time of death and after death, with staff less likely to want to transfer patients to hospital toward end of life.” (Dr Kathy Walsh, 2017).

 

The feedback from staff has been extremely positive, with staff reporting that their confidence and communication skills in relation to end-of-life care had improved as a result of their participation in the Programme. The Journey of Change Evaluation report also identified staff development in term of recognising and providing caring to a dying person, accessing specialist palliative care earlier, accessing GP services earlier, pain management and supporting the person to die in the care centre as per the wishes of the resident.

 

Staff from St Oliver Plunkett Community Hospital who have participated in the programme have reported ‘because we are more confident talking to our residents about death and end of life, we have a lot more conversations with them about what they want, like and dislike.  As a result, we know a lot more about what our residents want at end of life and we do our very best to give them what they want’.

Annual November Public Information Evening on Bereavement 2017

Posted on: November 9th, 2017
Our annual November public information evening on bereavement was held on 2nd November.  This annual event aims to provide information about grief and the range of supports available to bereaved people.  The evening opened with an introduction followed by a number of talks and video presentations.  Guest speaker Laura Kennedy (Columnist with The Irish Times, author of the personal reflection column ‘Leavetaking’) spoke on the theme ‘Living with Loss’.  At the event a number of voluntary bereavement support services and professional therapeutic services were represented (listed below).  The audience had an opportunity to visit these stands and be informed of what services they provide.  Admission is free to this annual November event which is open to all members of the public, in particular to those that have been bereaved.

 

If you would like to be notified of this event in the future please contact Iris Murray Tel 01 679 3188 email iris.murray@hospicefoundation.ie

A Little Lifetime Foundation, Anam Cara Parental & Sibling Bereavement Support, Barnardos Children’s Bereavement Service, Beginning Experience, Bethany Bereavement Support Group, Citizens Information Service, Féileacáin (Stillbirth & Neonatal Death Association of Ireland), FirstLight, Irish Childhood Bereavement Network, Irish Hospice Foundation, Living Links, Miscarriage Association of Ireland, PCI Counselling Service, Pieta House Bereavement Services, Purple House Cancer Support, Rainbows Ireland, SAH (Support After Homicide), Turas Le Cheile Bereavement Support Service, Turning Point, Village Counselling Service

Have you sent your completed CHY3 Cert back to us? Clock is ticking…

Posted on: October 18th, 2017

A while ago we sent our generous supporters  a reminder letter about the charity tax back scheme and a CHY3 cert enclosed. If you received it, please don’t wait, return it today!

We will be submitting our claim to the Revenue Commissioners in the coming weeks so it’s vital your form comes in before that. It only takes a minute. We’ve made it as easy as possible. In just three quick steps you can release the full potential of your generous gift to us, so please complete, sign and return the form we sent you. It’s as simple as that. And it still won’t cost you a single cent more!

Thank you for your prompt response!

For more information on our Tax Back Campaign please click HERE