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CEOL Compassionate End of Life in Residential Care Centres – A Quality Improvement Approach

Posted on: November 23rd, 2017
Photographer - Paul Sherwood paul@sherwood.ie 087 230 9096

Irish Hospice Foundation CEOL ‘Compassionate End of Life’ programme launch

CEOL which stands for ‘Compassionate End of Life’ empowers all staff to provide the best possible end-of-life care for people living in residential care centres (RCC) in Ireland.

 

“All of us want assurance that the care our loved ones receive at end of life in residential care should be the best. The Irish Hospice Foundation (IHF) developed the Journey of Change programme to enable RCC (where 25% of people die each year) continually review and reflect the care they provide at end of life and introduce changes so that residents needs and their families are met in a truly holistic manner. We are very proud and grateful to the 100 RCC sites that participated in the first phase of the p rogram, and particularly those who engaged in the evaluation, which has informed the next phase CEOL” according to Marie Lynch, Head of Healthcare programmes, Irish Hospice Foundation.

 

This launch is the next step to introduce a national framework that will enable residential care centres keep a constant focused on providing compassion at end of life for residents, families and staff.

Partnership

The Irish Hospice Foundation is pleased to announce our partnership with Beechfield Care Group, and we are delighted that Sarah McMickan CEO of Beechfield Care Group will formally launch the CEOL programme.  We have agreed to work together to achieve the recognition amongst providers and policy makers that end-of-life care is a key component of quality care in nursing homes, and will be advocating for required investment to ensure this takes place.

 

“As CEO of Beechfield Care Group, I am very aware of how important it is for the residential care sector to continually seek improvements from the broadest perspective in the delivery of person centred care as residents approach the end of their life.  For this reason I am delighted to launch the Irish Hospice Foundation CEOL programme; it will be very helpful to the sector to have a formal framework to support the delivery of compassionate care at end of life. This will become increasingly important with the change in Ireland’s demographics, and more people dying in residential care settings,” said Ms Mickan.

 

In Ireland there are currently over 28,000 people living in residential care, with approximately 7,000 people dying each year in these settings. As highlighted by the latest ERSI report (Projections of demand for healthcare in Ireland, 2015-2030) the number of people living in nursing homes is projected to increase by between 40 to 54 per cent by 2030.

 

Providing compassionate care for residents approaching the end of their life is a fundamental component of person-centred care.  The CEOL Programme enables staff to continuously review, reflect and improve the end-of-life care they provide for residents, their families and the staff themselves. The programme embeds a continuous quality improvement approach and is built around the needs of the individual, with the resident always at the heart of every decision.  Good end-of-life care is about being supported to live well until you die.

Pilot

The pilot phase of the programme called ‘A Journey of Change’ ran from 2015 to 2016 in which over 100 RCC’s participated in. Dr Kathy Walsh (KW Research and Associates Ltd) conducted an independent evaluation of the Journey of Change programme and found that that it has the capacity to improve end-of-life care in participating residential care centres.  “Where all elements of the Programme have been implemented, there have been significant changes in practice in relation to End-of-Life Care (EOLC) planning, at time of death and after death, with staff less likely to want to transfer patients to hospital toward end of life.” (Dr Kathy Walsh, 2017).

 

The feedback from staff has been extremely positive, with staff reporting that their confidence and communication skills in relation to end-of-life care had improved as a result of their participation in the Programme. The Journey of Change Evaluation report also identified staff development in term of recognising and providing caring to a dying person, accessing specialist palliative care earlier, accessing GP services earlier, pain management and supporting the person to die in the care centre as per the wishes of the resident.

 

Staff from St Oliver Plunkett Community Hospital who have participated in the programme have reported ‘because we are more confident talking to our residents about death and end of life, we have a lot more conversations with them about what they want, like and dislike.  As a result, we know a lot more about what our residents want at end of life and we do our very best to give them what they want’.

Annual November Public Information Evening on Bereavement 2017

Posted on: November 9th, 2017
Our annual November public information evening on bereavement was held on 2nd November.  This annual event aims to provide information about grief and the range of supports available to bereaved people.  The evening opened with an introduction followed by a number of talks and video presentations.  Guest speaker Laura Kennedy (Columnist with The Irish Times, author of the personal reflection column ‘Leavetaking’) spoke on the theme ‘Living with Loss’.  At the event a number of voluntary bereavement support services and professional therapeutic services were represented (listed below).  The audience had an opportunity to visit these stands and be informed of what services they provide.  Admission is free to this annual November event which is open to all members of the public, in particular to those that have been bereaved.

 

If you would like to be notified of this event in the future please contact Iris Murray Tel 01 679 3188 email iris.murray@hospicefoundation.ie

A Little Lifetime Foundation, Anam Cara Parental & Sibling Bereavement Support, Barnardos Children’s Bereavement Service, Beginning Experience, Bethany Bereavement Support Group, Citizens Information Service, Féileacáin (Stillbirth & Neonatal Death Association of Ireland), FirstLight, Irish Childhood Bereavement Network, Irish Hospice Foundation, Living Links, Miscarriage Association of Ireland, PCI Counselling Service, Pieta House Bereavement Services, Purple House Cancer Support, Rainbows Ireland, SAH (Support After Homicide), Turas Le Cheile Bereavement Support Service, Turning Point, Village Counselling Service

Have you sent your completed CHY3 Cert back to us? Clock is ticking…

Posted on: October 18th, 2017

A while ago we sent our generous supporters  a reminder letter about the charity tax back scheme and a CHY3 cert enclosed. If you received it, please don’t wait, return it today!

We will be submitting our claim to the Revenue Commissioners in the coming weeks so it’s vital your form comes in before that. It only takes a minute. We’ve made it as easy as possible. In just three quick steps you can release the full potential of your generous gift to us, so please complete, sign and return the form we sent you. It’s as simple as that. And it still won’t cost you a single cent more!

Thank you for your prompt response!

For more information on our Tax Back Campaign please click HERE

Death and Taxes in Spotlight at #Forum2017

Posted on: October 10th, 2017

October 10th 2017: Ireland’s first Charter on Dying, Death and Bereavement was launched today at the ‘Forum on End of Life’ conference organised by the Irish Hospice Foundation (IHF) in Dublin Castle.

‘The People’s Charter on Dying, Death and Bereavement in Ireland’ is solidly based on results of the IHF ‘Have Your Say’ survey where almost 2,600 people across Ireland shared their personal views last September on what they feel is needed for a good death and in bereavement. It is apt that death and taxes are in the spotlight today, because these are the only two certainties in life.

People want to live and die in an Ireland where death is talked about and not hidden away. People want to prepare for what lies ahead and get relief from pain, no matter the location or condition. People who are bereaved want space and time to grieve, talk and remember. These are samples of insightful and heartfelt survey findings.

Speaking from Dublin Castle, IHF CEO Sharon Foley said: “This important charter was formed by public opinion and gives us a powerful tool to bring to Government. The charter received overwhelming support today from 350 delegates. The people of Ireland want to have their say about end of life. Being treated with and maintaining dignity matters to people. Many described their fear of pain, with access to adequate pain relief being vital. Care, dignity, comfort and pain were recurring words used by people. 

We will continue to feed and nurture this charter so it grows and is responsive to what people want. More people had their say today and we will continue to lead the discussion.”

Mrs Justice Catherine McGuinness Speaks Passionately

Mrs Justice Catherine McGuinness is Chair of the National Council of the Forum on End of Life in Ireland and spoke passionately at today’s forum to over 350 delegates.

“As citizens and as a society we need to break the taboo that surrounds death. We need to assert clearly that when it comes to end-of-life we need more rights than the last rites. We need to support each other to develop a greater sense of personal responsibility and put effective systems in place to enable people to act responsibly. Talking about death is a useful first step. Forum enables that conversation engaging in individual and collective futures.”

 

Please credit Paul Sherwood
Pictured are David McCullagh RTE, who chaired the morning session, Sharon Foley, CEO, IHF, Professor Jenny Kitzinger, University of Cardiff and Mrs Justice Catherine McGuinness, at today’s launch of ‘The People’s Charter on Dying, Death and Bereavement in Ireland’

Advance Care Directive

Keynote speaker was Professor Jenny Kitzinger from Cardiff University who co-directs the ‘Coma and Disorders of Consciousness Research Centre’. Jenny spoke about challenges around how decisions are made when the patient has lost the ability to make choices for themselves. Jenny was speaking about her own research for the Welsh Government – and also speaking from the heart about her own personal experience with sister Polly Kitzinger.

“There is a huge taboo, fear and superstition in talking about death and dying but unless we do talk about it, we risk leaving our family vulnerable to maltreatment. It’s estimated that one in three of us will face end of life unable to make decisions, this could be a car crash in your 20’s with devastating consequences or extreme dementia in your 80’s.

People should have the right to the best support and care possible at end of life. Many people may lose their capacity and ability to make their own decisions which is why we should think about it, talk about it and tell people about our choices and consider writing an advance care directive too,” concluded Professor Kitzinger.

Forum 2017 is the 5th biennial National Conference of the Forum on End of Life in Ireland. The Forum has been kindly supported by UPS Ireland and its employees.

Here’s the Have Your Say report 

‘The People’s Charter on Dying, Death and Bereavement in Ireland’ can be viewed here.

 

 

 

Living with Loss

Posted on: September 28th, 2017

 

Our next annual November public information evening on bereavement will be held on Thursday, 2nd November 2017.  This annual event aims to provide information about grief and the range of supports available to bereaved people.  The evening will open with an introduction followed by a number of talks and video presentations.  Guest speaker Laura Kennedy (Columnist with The Irish Times) will speak on the theme ‘Living with Loss’.  At the event a number of voluntary bereavement support services and Professional Therapeutic Services will be represented.  The audience will have an opportunity to visit these stands and be informed of what services they provide.  Admission is free to this annual November event which is open to all members of the public, in particular to those that have been bereaved.  If you have any queries please contact Iris Murray Tel 01 679 3188

email iris.murray@hospicefoundation.ie

 

 

 

This public event is free to attend.  Bookings are not necessary.

Welcoming “Finite Lives” Report

Posted on: May 19th, 2017

The Irish Hospice Foundation welcomes the newly published report Finite Lives which examines State Services around dying, death and bereavement.

 

 

 

 

 

 

Angela Edghill, Irish Hospice Foundation, Advocacy and Public Engagement Manager said the ground breaking report is the first of its kind and proves that dying is everyone’s business.

Ms Edghill added: “It provides great evidence for a more coordinated and strategic approach to dying, death and bereavement by all of the agencies and Departments of State. Only good can come of this report since the issues it examines affect us all, without exception – but only if the State acts on Senator O’Donnell’s sensible, practical and reasonable recommendations.”

 

The report makes 16 key recommendations including the promotion of the Irish Hospice Foundation’s Think Ahead planning tool. The purpose of the Think Ahead document is to guide members of the public in discussing and recording their preferences in the event of emergency, serious illness or death.

Further information is available on www.thinkahead.ie

Finite Lives by Senator Marie-Louise O’Donnell was launched by An Taoiseach Enda Kenny this afternoon (Wednesday, 17 May) at Government Buildings.

 

The report is available here for download.

 

C’mon the Camino with Katherine Lynch

Posted on: April 18th, 2017

From Dancing Shoes to Hiking Boots

Make every step count for hospice care this September by walking the Camino de Santiago with actress Katherine Lynch in aid of the Irish Hospice Foundation (IHF).

The Leitrim-native will walk the scenic coasts of Portugal and northern Spain to support hospice care and IHF programmes such as Nurses for Night Care and Hospice Friendly Hospital Programme (HFH).

Katherine’s idonate link if you wish to support is here.

The IHF event takes place from September 24th to 1st October taking in beaches, rolling hills and gentle, flat paths with walking distances of approximately 20km daily. This section of the Camino is located in the region of Galicia – a region also known as the ‘Ireland of Spain’.

 

Helen McVeigh, IHF Director of Fundraising, commented: “By stepping out on the Camino you are embarking on a personal challenge but also supporting people nationwide who are facing death or bereavement. Our vision is for no one to face these difficult times without the care and support they need. This is your chance to make every step matter.

Katherine is an amazing ambassador and we’re delighted to have such a high profile personality leading the way. Nurses for Night Care service provided 2,027 nights of care in 2016 and helped 600 families. 48 hospitals have been involved in our HFH programme since it was founded 10 years ago.”

Flights, accommodation and full board are included and full details can be found here or by calling 01 6793188.

Collage

 

Amazing holiday awaits… get involved in our Summer Raffle and support Nurses for Night Care Service

Posted on: March 23rd, 2017

Compassion in Hospitals – HSE consolidates the Hospice Friendly Hospital Programme

Posted on: March 23rd, 2017

A new group to copper-fasten the Hospice Friendly Hospital Programme in all adult, child and maternity hospitals across the country has been launched.

The Health Service Executive and Irish Hospice Foundation (IHF) has announced the new Joint Oversight Group of the Hospice Friendly Hospitals Programme today (Thursday, 23 March).

Marie Lynch, IHF Head of Healthcare Programmes said: “An average 30,000 deaths occur in Ireland every year. Approximately 48 per cent of those people will die in an acute hospital.

“The Hospice Friendly Hospitals Programme is an initiative of the IHF to ensure that end-of-life, palliative and bereavement care is central to the everyday business of hospitals, and the best possible care is  available to people at end-of life and their loved ones at this difficult time.”

The Hospital Friendly Hospitals Programme has been adopted by 48 hospitals nationwide since it was established in 2007 to improve the standard of end-of-life care in Irish hospitals. The new Joint Oversight Group is being formed to further support the embedding of the Hospice Friendly Hospital Programme within HSE structures. It will also examine ways to expand and develop the programme across the hospital system where possible.

Dr Ciarán Browne, HSE Acute Hospital Division said: “We are very pleased to continue and extend our close working relationship with the Irish Hospice Foundation on the Hospice Friendly Hospital Programme. We recognise the importance of this work to patients, their families and staff. The HFH Programme supports our goal of creating a caring and compassionate environment across our hospital system.”

Margaret McKiernan, Marie Lynch, Dr Ciaran Browne

The new group is chaired by Professor Cillian Twomey. It includes experts from clinical programmes in palliative care, older persons, emergency department and paediatric care and will meet three times a year.

The HFH programme co-ordinates three networks for hospital staff to promote improvements in end-of-life care from the perspective of patients, families and hospital staff; the Acute Hospital Network, Maternity/Children’s Network and The End-of-Life Co-Ordinator Network. The programme advocates for investment in palliative, end-of-life and bereavement care services at the hospital, hospital group and national levels. It develops and promotes the use of ceremonial resources such as the end of life symbol, family handover bags, drapes and ward altars.

It also develops promotional and educational supports for all hospital staff. It co-ordinates the Design and Dignity Project which aims to transform the way hospital spaces are designed for people at end-of life. It provides expert advice and guidance directly to hospital staff to support the implementation of the Hospice Friendly Hospitals Programme in their hospitals.

Caption: Margaret McKiernan, Chairperson HFH Acute Hospital Network with Marie Lynch, Head of Health Care Programmes, Irish Hospice Foundation and Dr Ciaran Browne, National Lead, HSE Acute Hospital Division pictured at the announcement of new Joint Oversight Group of the Hospice Friendly Hospitals Programme

HFH Hub

RTE Feature Special Report on IHF Cycle

Posted on: March 20th, 2017

RTE’s Claire Byrne Live did a recent special feature on our charity cycle from Porto to Lisbon in June.

Father and daughter Paul and Evelyn Kimmage, who are partaking in our cycle, speak about why everyone should be supporting end-of-life care. “It could be your loved one or it could be you.”

You can donate here.