Archive for the ‘Uncategorized’ Category
Seamless Care PathwayThe aim is to ensure a seamless care pathway across inpatient, homecare, nursing home, acute hospital and day care services. It recommends that specialist palliative care services should be available to all patients in need, wherever they are, and whatever their disease. Proposes targeted investment to develop service provision over 3 year timeframe and align service levels as recommended in the ‘Report of the National Advisory Committee on Palliative Care’ (2001).
Irish Hospice Foundation CEO Sharon Foley welcomed the new framework and is looking forward to working in unison with all bodies to ensure specialist palliative care services is available to all patients in need, wherever they are, and whatever their disease.
In the picture: John Hennessy, HSE National Director for Primary Care, Minister for Health Simon Harris, Sheilagh Reaper-Reynolds, HSE National Lead for Palliative Care
The HSE has launched ‘Palliative Care Services Three Year Development Framework - 2017 to 2019’. The Framework informs the development of adult palliative care services, both generalist and specialist, in Ireland for the three-year period from 2017 - 2019. Its aim is to ensure a seamless care pathway across inpatient, homecare, nursing home, acute hospital and day care services.
Palliative care is an active and total approach to care from the point of diagnosis through to death and beyond. It embraces the physical, emotional, social and spiritual elements of care and engages with patients and families as equal decision makers in that care. The Framework being launched today aims to enhance palliative care service delivery in both community and acute hospital services, with a major focus being placed at all times on the delivery of quality person-centred, safe care for patients and their families.
Speaking at the launch Minister for Health Simon Harris said, "Palliative care is a key part of our health service and it is essential that when it comes to end of life people are treated with dignity and respect. These values must be enshrined in the quality of care which is provided to patients and their families. We must also work to ensure that palliative care services are accessible across the country and that there is an integrated pathway across in-patient, homecare, nursing home, acute hospital and day care services. As Minister for Health I welcome the publication of this important three year Framework and I am assured that my Department will continue to work closely with the HSE on the implementation of its recommendations and actions."
Welcoming the publication, John Hennessy, HSE National Director for Primary Care said, “The focus of the Framework was to identify the gaps that exist in the current level of service provision and to present a set of recommendations and actions which over the duration of the Framework (and at times beyond) would seek to address these service issues / deficits, subject to available resources. The Framework looks at palliative care service delivery in both community and acute hospital services, with a major focus being placed at all times on the delivery of quality person-centred, safe care for patients and their families.
“A key objective for the Steering Group was to seek to improve access to palliative care services across the country, particularly in those areas which for the last number of years have been identified as inpatient service ’blackspots’. There are clear recommendations contained in the Framework which, on implementation, will achieve this objective.”
Sheilagh Reaper-Reynolds, HSE National Lead for Palliative Care said, “This framework captures the core issues that face us in improving palliative care services for people living with life limiting illnesses and their families. Focused consultation took place with many key stakeholders, including service user representative bodies and organisations, healthcare staff and management. This feedback enables us to plan together the development of palliative care services in a much more effective way that is going to meet the needs of our changing population”.
The Framework recommends that specialist palliative care services should be available to all patients in need, wherever they are and whatever their disease. It highlights that there are still areas of the country without an inpatient unit, most notably in the Midlands, the South East, and the North East. Other areas do not have the recommended bed complement and/or the recommended staffing levels. In addressing these shortcomings, the Framework sets out recommendations to ensure that by 2021, there will be equitable access to specialist inpatient palliative care services throughout the country.
It notes that full access to palliative care services for patients with non-malignant disease is now the norm in the sector, with service providers accepting referrals based on need rather than condition. While the work of making palliative care available to patients with non-cancer conditions must continue, attention should now also extend to the needs of vulnerable populations such as people with disabilities, migrants, and prisoners.
The Framework states that by investing in properly resourced community services to care for patients with both malignant and non-malignant diseases, particularly in the last three months of life, this leads to reduced inappropriate hospital admissions, more appropriate care pathways and improved experience for patients and their families.
The Framework complements and builds on the government’s palliative care services policy document ‘Report of the National Advisory Committee on Palliative Care’, published in 2001. It proposes targeted investment to develop palliative care service provision over its timeframe and align service levels with those recommended in the 2001 Report.
The Irish Hospice Foundation has warmly welcomed the news in Budget 2018 that a Charity VAT Compensation Scheme will be introduced. This follows strong campaigning by the Irish Hospice Foundation to help ease the burden on hospices nationwide.The Charities VAT Compensation Scheme announced today will take effect from 1 January 2018 but will be paid one year in arrears i.e. in 2019 charities will be able to reclaim some element of the VAT costs arising in 2018. Charities will be entitled to a refund of a proportion of their VAT costs based on the level of non-public funding they receive. The scheme, including the amount provided in the fund, will be subject to review after three years. Claims under the scheme cannot be made until 2019 as it will take some time for the Revenue to establish IT and administrative systems.
Below is the essence of our campaigning and an article we wrote previous to the Budget:
Reducing the Burden on CharitiesPayment of VAT is a serious burden for hospices nationally, especially those where a capital build is planned, explains The Irish Hospice Foundation (IHF). Capital builds are underway or planned in Dublin – North and South, Limerick, Galway, Mayo/Roscommon, Wicklow and Waterford, with long term plans for the Midlands, Drogheda and Cavan. It is current government policy that the capital costs of hospice units are funded from charitable sources – and to date voluntary hospice groups have funded the building of these vital facilities.
IHF CEO Sharon Foley said: "The requirement to pay VAT on build and fit-out expenditures adds a huge burden to hospices and increases their fundraising challenges – already strained in the current climate. As an example, if a capital build costs €11m – 13% of this represents VAT – a staggering €126,500 for each hospice. In addition the fit-out of each unit might cost €2m, so VAT will represent an additional €37,000 for the hospice. These costs should not be necessary for hospices and other such charities reliant on charitable fundraising from the public.The IHF feels the effects of the imposition of VAT on charities. In many cases the VAT payments far exceed any Exchequer support given through the Government Charitable Donation Scheme and resulting in an annual net loss." The IHF is a member of Charities Institute Ireland (Cii) which has been campaigning for measures to reduce the burden of VAT on charities and has participated, with Finance and Revenue officials, on a Working Group set up by then Finance Minister Noonan in 2015 to look into the issue. "The Working Group Report confirmed that there are no legal obstacles to the introduction of a VAT Compensation Scheme in Ireland. In his Budget 2017 speech, Minister Noonan said that he had asked his officials to engage again with Cii with a view to reviewing the options. Earlier this year Cii provided his officials with a comprehensive updated report on the impact of VAT on charities in Ireland."
Political SupportFrom cross party discussions in recent weeks, Cii believes that there is significant political support across the Oireachtas for a VAT Compensation Scheme as envisaged by the Working Group.
"We hope that Budget 2018 will finally recognise the inequity, in a modern and progressive society, of levying a tax (VAT) on regulated and focused organisations dedicated to meeting the needs of our most vulnerable.As we now approach Budget 2018, we are asking Government to bring this issue to a positive resolution and support the Irish Hospice Foundation and the voluntary hospice movement in removing the burden of VAT on charities," concluded Ms Foley.
Irish Hospice Foundation Pre Budget Submission calls for a national strategy for palliative, end of life bereavement care
- 300,000 newly bereaved every year
- IHF pre-budget submission calls for change
Everyone deserves the right to a good death“Everyone in Ireland deserves to have a good death. For this to happen, improvements are needed in Primary Care, Residential Care and in Hospital settings. These improvements need to specifically focus resources and expertise available outside traditional working hours as well as the development of Specialist Palliative Care in the Midlands and North East. From a public health perspective, the IHF recommend that the Assisted Decision Making (Capacity) Act 2015 is fully commenced this year. In the meantime there is an urgency to invest resources to ensure that Irish citizens and healthcare staff are aware of and fully understand the implications of this Act, particularly the impact on advance healthcare planning and facilitating people to make choices about their own healthcare” stresses Marie Lynch, Head of Healthcare Programmes, the Irish Hospice Foundation.
Call for delivery of the best palliative, end of life and bereavement care in all care settingsThe IHF asks the Government to: Ensure everyone has access to the best care at end of life and in bereavement through a political and public policy commitment to a strategic, responsive, population-wide approach to end of life issues and ensure the health care system delivers best palliative, end of life and bereavement care in all care settings. The IHF believes that with a more strategic approach, better end-of-life care can make a real difference to both the quality of healthcare provided to the citizen and the cost of health and social care to the State – a view supported by an Oireachtas Committee in 2014. 
- According to Angela Edghill, Advoacy and Public Engagement Manager said “such a strategy supports: Government policy set out in the 2016 Programme for a Partnership Government which seeks to ensure that we have an Ireland that looks after its people from the time they come into the world to the time they leave and promises investment in end-of-life care at all life stages. This proposed integrated approach echoes that set out in the National Positive Ageing Strategy and most recently by the Finite Lives Reports .
- Delivery of the targets set out in the Sláintecare Report of the Oireachtas Committee on the Future of Healthcare 2017 which builds on the 2001 National Strategy on Palliative Care (NACPC, 2001) and the new framework for palliative care services, publication of which is expected.
History of Hospice RTE’s Mary Kennedy launches digital archive capturing 30 years of Irish Hospice Foundation
RTE’s Mary Kennedy launches digital archive capturing 30 years of Irish Hospice Foundation
Mother Teresa, Bono, Maeve Binchy, Gabriel Byrne, Seamus Heaney, Pat Kenny, Miriam O’Callaghan, Marian Finucane feature in our online archive - archives.hospicefoundation.ie
The archive was launched in tandem with our impact report ‘Our Impact 1986-2016’ outlining 30 years of achievements.HUNDREDS of previously unpublished documents including letters from Mother Teresa about a hospice for AIDS patients are included in an online archive documenting 30 years of the Irish Hospice Foundation (IHF), . People can access the free online resource and browse through collections which feature some of the best known names from the world of music, poetry, literature, broadcasting and politics who have supported the IHF over three decades. There are 2,000 items in the online archive created to mark the 30th anniversary of the IHF. Mary Kennedy launched the archive in the Royal Irish Academy, saying: “This archive spans three decades of the IHF since it’s foundation in 1986 and features some very familiar names that have supported the hospice movement. It maps the history of the hospice including ground breaking IHF programmes like Hospice Friendly Hospitals and Nurses for Night Care, innovative fundraising projects like the Whoseday Book and their pioneering research. It brings items that were hidden to light in an easy accessible format. If you’ve been involved with the IHF you may well find your image or name mentioned in the archive. The archive will evolve and update so if you have items of interest then contact the IHF to have them included.” The free online resource contains over 75 Collections, 1070 images, 223 text files, 66 videos and 20 audio recordings at present. Items at archives.hospicefoundation.ie include:
- TK Whitaker’s speech and photos from IHF launch in 1986
- Original photograph of Seamus Heaney's hands by photographer Perry Ogden with notes for cover of the Whoseday Book – a Unique Diary for the Millennium. The book in aid of the IHF had 366 contributors including poets, filmmakers and song writers.
- Correspondence between Dr Mary Redmond & Mother Teresa
- Correspondence relating to the preparation of the Whoseday book including draft sketches and letters for the final publication valued at £550,000 in 2000. The collection was bought by Bank of Ireland and was donated to the National Library.
- A unique design agency sketch giving layout of the Peter and the Wolf book which was illustrated by Bono in aid of the IHF.
- The original letter from Dr Mary Redmond to Sr Frances Rose O’Flynn of Our Lady’s Hospice Harold’s Cross in 1985 recounting how the death of her father highlighted the importance of hospice care for terminally ill patients and their families.
- A meeting memorandum between Dr Redmond and Dame Cicely Saunders – founder of the modern hospice movement – in February 9th
Laura Rooney Ferris, IHF Information and Library Manager and archive creator said: “Often after a death, the first thing we do is open family albums or boxes in the attic to bring back memories of a lost loved one. At the IHF we’ve spent three decades supporting people at end of life so the occasion of our 30th anniversary was a time to pause and gather on our own memories.In creating this digital archive we are publically sharing our family album. We are incredibly grateful to Mary Redmond’s family for this large collection of her personal papers and documents, and also to former board and staff members and people involved throughout the 30 years who kindly contributed. We’re calling on members of the public to share their photographs, memorabilia and items related to the IHF projects for addition.” Denis Doherty, IHF’s longest serving board member said: “A look back at the RTE documentary ‘Today Tonight – A Hospice for the Dying’ in the archive shows the remarkable vision Dr Mary Redmond had in setting up the IHF. The programme, aired 30 years ago, shows death for ‘many people’ in Ireland at that time ended in severe pain and isolation. Few doctors and nurses were trained to care for the special needs of the dying, the bereaved and those in pain. There were only three named hospices; one in Cork, Dublin and Limerick. The idea of dying without pain seemed a curiosity - an alien concept. “The work of the IHF and its supporters has changed that. The hospice movement with its concentration on quality of life, excellent symptom control and care of both the dying and their loved ones has grown from a ‘small movement’ to a national movement.” Mr Doherty said the IHF will continue to strive for the right of every individual in Ireland to live as well as possible up to the moment of their death. “It will continue to embrace Dr Redmond’s vision that no one will face death or bereavement without the care and support they need.” The archive was launched in tandem with the IHF’s impact report ‘Our Impact 1986-2016’ outlining 30 years of achievements. Jean McKiernan, IHF Chairperson said: “The archive and impact report show great strides in the expansion of hospice and palliative care services. The IHF is making a difference at end-of-life in homes and across healthcare settings 24/7. None of this work has been achieved alone we work in partnership with individuals, communities and organisations across Ireland.” For example:
- More than 150 hospitals and nursing homes have signed up to IHF programmes to improve end-of-life care. About three thousand healthcare professionals take part in IHF education and training programmes every year.
- The IHF’s Nurses for Night Care Service is helping 500 families annually, giving people the option to be cared for in their own homes during their final days.
- It has invested €4.5 million in palliative care services for children since 2005.
Quality Support - The Way forwardThis years conference is entitled ‘Quality Support: The Way Forward Standards | Care | Research’ and aims to look deeper into what quality childhood bereavement support involves for practitioners. The conference is an ideal opportunity for professionals working with bereaved children to deepen their understanding of the needs of bereaved children and gain further insight and knowledge, from recent evidence based research, on the best ways to support them.
Book nowTo book your ticket now, visit our conference booking page and booking page HERE
“Nationally, we owe a huge debt to Mary Redmond and the Irish Hospice Foundation. Mary's vision was to make hospice care ordinary; not in its quality but in its quantum in Ireland,” - An Taoiseach Enda KennyDr Mary Redmond, 64 died on Easter Monday last year. The corporate lawyer, academic, social entrepreneur and author founded The Irish Hospice Foundation (IHF) 30 years ago. Last Friday, The Irish Hospice Foundation’s Evening of Celebration and Remembrance – The Dr Mary Redmond gala Dinner – was held at the 5* Intercontinental Hotel, Dublin. An Taoiseach, who was Guest of Honour, continued his tribute at the gala dinner: “Mary was an intellectual, an author, an artist, a legal mind, a board member, deputy governor of the Bank of Ireland and a Fellow of Cambridge. “All the way through life you meet people who stand out and they make a mark for whatever reason. There’s something about them that makes a difference to you and that’s what I felt about Mary Redmond when I met her for the first time,” the Taoiseach said. RTÉ Prime Time presenter Miriam O'Callaghan also paid tribute to the “extraordinary” founder of the IHF as the woman she most wanted to be like when she was a teenage girl. Miriam is an IHF ambassador and made her tribute at the gala dinner.
"I was a law student in UCD and I always remember the first day in my lectures, this exquisitely beautiful woman walked into the room. I was 16 and she was probably no more than 24 or 25. It was Mary Redmond. She was lecturing in UCD in law and she wasn’t just the most beautiful woman I had ever seen, she was the most intelligent, she was the most brilliant and at that moment, I thought; ‘I want to be like Mary Redmond.’“I could never be that, but she was one extraordinary woman. She shaped me as a young woman, as a 16 year old.” Miriam lost her own sister Anne, aged 33 to cancer. She said: “In a way death has touched us all. That’s why the Irish Hospice Foundation and what Mary Redmond did matters so much.” Dr Redmond set up the IHF after the death of her father Sean at Our Lady’s Hospice in Harold’s Cross in 1985. At the time there were only three hospices in Ireland and she felt strongly that hospice care should be available to all that needed it. Dr Redmond’s son Patrick Ussher spoke to guests about his mother’s own philosophy on life and her courage at end-of-life.
“She said there were three important things in life; to love, to live and to leave a legacy.Of these love for her father from whom this advice originally came drove her to found the Irish Hospice Foundation.” Mr Ussher said when his mother was diagnosed “with a form of cancer that carried a very short life expectancy she made a very courageous decision, to surrender her fears to God and to live.” He added: “Everyone has their own way of dealing with terminal illness and these must be respected. But hers was to give the illness no time, to give it no power or control over her in any way. She did not discuss it with others, and she was determined to be something much more than a diagnosis and this was a decision that took enormous bravery.” Mr Ussher said she focused her energies instead on doing things that were meaningful to her like spending time with her family and friends, writing books and deepening her faith.” Mr Ussher added: “Nearly every day without fail she would spend an hour in silent meditation. This practice gave her an internal strength but also a simple spirit of joy in the sheer fact of being alive. I could see the resolution develop in her that no matter how hard life was both physically and emotionally being alive was nevertheless worth every second. She would often say every moment is so precious.” IHF chairperson Jean McKiernan said the organisation remains “loyal” to Dr Redmond’s vision and strives for the best care at end of life for everyone. Dr Redmond began teaching law at University College Dublin at 19 years old. She also studied at Oxford and obtained her Ph.D at Cambridge. She went on to become Fellow and Dean of Studies in Law at Christ’s College Cambridge and was elected an Honorary Fellow. She became the leading academic on Irish labour law and published extensively. She set up her own firm in the mid 1980s in Ireland and subsequently merged her firm with Arthur Cox. She sat on the board of the RTE Authority and served consecutive terms on the Labour Relations Commission. -ENDS-
Westmeath people turned out in force at Annebrook House Hotel Mullingar to speak out about dying, death and bereavementThe Death Café Conversation was organised by The Irish Hospice Foundation as part of their ‘Have Your Say’ national campaign and all feedback from the café will inform the first ever ‘Irish Charter on Dying, Death & Bereavement 2016’. Sharon Foley, CEO of The Irish Hospice Foundation was in Mullingar to meet with people and talk about the importance of this campaign. “The café conversation revealed amazing insights into what is priority at end of life and Mullingar surely had their say. Huge thanks to the warm crowd for giving such personal and valuable insights.
It really sparked conversations about end of life such as who will mind the dog when I’m gone, can I donate my body, we need a Last Aid Course to equip us to deal with dying, death and bereavement and it’s easier to talk to about other people’s death rather than your own.There was a also resonating call for more bereavement services in Mullingar and it was clear that people want to talk openly about death to normalise this life happening. Veronica Larkin of North Westmeath Hospice spoke after the event: “The members of North Westmeath Hospice Fundraising Committee were delighted to have the teams for Milford Limerick and from the National Hospice visit. The feedback from those who took part was so very positive. Participants enjoyed the structured manner in which the event was run while at all times having the freedom to have their say. Thanks also to The Annabrook House Hotel for their attention to detail." “People also completed the Have your Say survey on the day and all feedback will inform our ‘Irish Charter on Dying, Death & Bereavement 2016’ published next year. Anyone can complete the survey online https://www.surveymonkey.com/r/haveyoursayirl and follow the social media movement #haveyoursayirl,” continued CEO Sharon. Every day 80 people die in Ireland; that’s 29,000 people every year. Each of us will only get once chance to die, so it’s important to think about what matters to you. We believe best care at end of life is about supporting everyone to live well to the end with dignity and comfort, surrounded by loved ones. “We want you to #haveyoursayirl based on your experiences, knowledge, hopes and fears. We can then be informed on how to further ensure the best supports are in place for you and your loved ones. We are pleased to be leading such an important public discussion and creating this essential charter for the Irish people,” concluded Sharon. The Irish Hospice Foundation is partnered with Limerick Compassionate Communities (part of Milford Hospice) in the project; and working with the support of Dublin City, Fingal and South County Dublin County Councils. Photo: Pictured at the Mullingar Death Café is Veronica Larkin of North Westmeath Hospice
You’ll laugh. You’ll cry. You’ll want to call your mother!
Inspiring one-woman play exploring the unique relationship between mothers and daughters to tour Ireland
All proceeds to benefit local hospices through The Irish Hospice Foundation (IHF)Best-selling American author and renowned businesswoman, Mary Lou Quinlan, is bringing her emotional, one-woman hit play “The God Box: A Daughter’s Story” to Ireland to raise funds for local hospice groups. Based on her powerful New York Times bestselling memoir of the same name, Quinlan - recently named as one of Irish America Magazine’s Power 50 Women - shares her personal story of a family in love, in loss and in triumph. This comic and heart wrenching play tells how after her mother’s death Mary Lou discovered “God Boxes”, small containers stuffed with hundreds of tiny notes, sharing her mother’s innermost thoughts. They revealed her concerns about her kids’ demanding careers, to private wishes for people she’d never even met, to concerns about her own health and everything in between.
The poignant notes, scribbled in supermarket queues, restaurants, and at the kitchen table, were her mother’s way of releasing life’s worries and hopes. The discovery of the boxes triggered Mary Lou’s own unraveling, a journey to confront the greatest human challenge – learning to let go.Co-written with Martha Wollner, an award-winning actor/playwright and director of NYC’s LAByrinth Theatre, the play has been presented in theatres across the US, including a sell out Off-Broadway run. In 2014 it enjoyed a 24-night run to rave reviews at the Edinburgh Festival Fringe. Previews in Limerick and Dun Laoghaire in 2015, and recently in Belfast, drew warm Irish receptions to this personal family story. Quinlan has donated all proceeds to hospice, cancer care and education. To date she has raised nearly $400,000. Mary Lou Quinlan is a remarkable woman. A hugely successful entrepreneur, she is widely known in the US for her marketing company, Just Ask a Woman, and as an adviser to over 100 blue chip companies on marketing to women. She was formerly CEO of a large NYC ad agency and has written four books and numerous national magazine articles in the US where she has addressed hundreds of conferences on women’s issues. She was a judge on Simon Cowell's show, American Inventor, in which people went before a panel to decide if their invention had what it takes.
All proceeds of the 2016 Irish tour will benefit local hospices through The Irish Hospice Foundation (IHF), a national charity striving for best care at end of life for all, and which is celebrating its 30th anniversary this year. Funds raised will support the IHF’s programme to support the voluntary hospice movement all across Ireland.Irish Hospice Foundation CEO Sharon Foley said: “The Irish Hospice Foundation is delighted to bring The God Box Tour to Ireland in aid of all local hospice groups. Every year we coordinate two national campaigns on behalf of local hospice groups and all funds from this exciting tour go to that fund”. Mary Lou Quinlan said: “The tender care of hospice meant so much at the most critical days of my family’s life. Sharing my mother’s story is a way I can give back and raise awareness for this cause in Ireland, the land of Mom’s ancestors and a treasured place to me and my husband Joe.”
Dates and VenuesThe God Box will perform in nine venues throughout Ireland in October. All shows start at 8 p.m.
- Oct 13th Dunamaise Arts Centre, Portlaoise, dunamaise.ie (057) 8663355
- Oct 14th The Everyman, Cork, everymancork.com (021) 450 1673
- Oct 15th Watergate Theatre, Kilkenny watergatetheatre.com (056) 776 1674
- Oct 21st Siamsa Tire, Tralee siamsatire.com (066) 712 3055
- Oct 22nd Lime Tree Theatre, Limerick limetreetheatre.ie (061) 953400
- Oct 27th Hawk’s Well Theatre, Sligo hawkswell.com (071) 916 1518
- Oct 28th Roscommon Arts Centre, roscommonartscentre.ie (090) 6625824
- Oct 29th Backstage Theatre, Longford backstage.ie (043) 334 7888
- Oct 30th Pavilion Theatre, Dún Laoghaire paviliontheatre.ie (01) 231 2929
Speaking to Marian, Brendan said: “It reawakened my faith in humanity. It’s magical the way death is embraced as a part of life. The hospice just embraces death in that way and gives people the finest death possible. And the gift that they allow the people around, families – there’s a beauty about it that is exquisite. “My mother and my father both ended their lives there [in St Francis Hospice, Raheny] and I’m so grateful for that. I don’t know how to express it properly how a good death is so life-affirming. It’s incredible the gift that it is,” said Brendan.The Irish actor also praised hospice staff nationwide for the life-changing help they give to patients and their loved ones.