Other resources for neurological illnesses

Resources for palliative and end-of-life care for neurological illnesses

Think Ahead Initiative

Think Ahead is a public awareness initiative aimed at guiding people in discussing and recording their care preferences while able to speak for themselves. It comprises a detailed form divided into six sections: (1) Key Information (2) Care Preferences (3) Legal Matters (4) Financial Matters (5) When I Die and (6) Sharing Information.

Think Ahead encourages people to think about important issues; talk to others about them (family, GP, etc.); and tell key people in their lives about their decisions and preferences in relation to these matters.

More on Think Ahead and download the Think Ahead form >>>

  • Toolbox Talks Information leaflets

A variety of quick reference leaflets are available through the link below and are useful to health professionals facing challenges with regard to providing end of life care. Access HERE

  • End of Life Care Map

The End of Life Care Map is designed for staff involved in any aspect of end-of-life care. It provides practical advice and prompts along the end-of-life journey from diagnosing dying to care after death. Access HERE  

  • MS Ireland

Multiple Sclerosis Ireland is the only national organization providing information, support and advocacy services to the MS community. They work with people with MS, their families and carers’, health professionals, students and others interested in or concerned about MS. Through their website, MS Ireland has outlined some useful information that all those with a neurological condition and their carers may benefit from when making medical and end-of-life decisions. This information can be accessed through the following pages:


  • Irish Motor Neurone Disease Association

The IMNDA is dedicated to providing care for people with MND, their carers and families as well as supporting research into the disease. Access HERE 

  • Neurological Alliance of Ireland

NAI is the national umbrella body representing over thirty not for profit organisations working with people with neurological conditions and their families. Access HERE 

  • Parkinson’s Association of Ireland

The Parkinson’s Associations aim is to assist people with Parkinson’s, their families and carers, health professionals and interested others, by offering support, a listening ear, and information on any aspect of living with Parkinson’s. They also initiate and fund research into Parkinson’s disease, its causes and affects. Access HERE

  • Huntington’s Disease Association of Ireland

Huntington’s Disease Association of Ireland is a national voluntary organisation which provides information and support to people with Huntington’s Disease, those at risk, carers, family members and health and social care professionals. Access HERE

  • Progressive Supranuclear Palsy

Information about this condition is available on the Parkinson’s Association of Ireland website. Access HERE 

  • Brain Tumour Ireland

Brain Tumour Ireland is a national voluntary organisation that provides information guidance and comfort for those affected by brain tumours. Their site contains information about palliative care for patients with brain tumours. Access HERE

  • The Carers Association

The Carers Association is Ireland’s national voluntary organization for and of family carers. As an organization it lobbies and advocates on behalf of carers. Some of the services that are offered include support groups and counselling. Access HERE

Other Organisations

  • All Ireland Institute of Hospice and Palliative Care

The All Ireland Institute of Hospice and Palliative Care (AIIHPC), is an all island organization, comprised of a Consortium of eight health agencies and four universities, all working to improve the experience of supportive, palliative and end-of-life care on the island of Ireland, by enhancing the capacity to develop knowledge, promote learning, influence policy and shape practice. The aim is to secure best care for those approaching end-of-life. Access HERE

  • Citizens Information

The Citizens Information Board is a statutory body which supports the provision of information, advice and advocacy on a broad range of public and social services in Ireland. Access HERE

International Organisations 


Updated 07/20/2017

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