Role of palliative care in the management of heart failureApproximately 10,000 people in Ireland die from cardiovascular disease every year. Studies show the symptom burden of Heart Failure is similar to that experienced by cancer patients yet these symptoms are not routinely identified or fully treated. In 2008 as part of the Palliative Care for All Programme, the Irish Hospice Foundation and the Health Service Executive published a report entitled Palliative Care for All: Integrating Palliative Care into Disease Management Frameworks. This report outlined the rationale and benefits of palliative care for people living and dying with illness such as heart failure. In response a number of disease-specific action research projects were initiated.
Action research project: Heart failure & palliative careResearch sites: Mater Misericordiae University Hospital, Connolly Hospital, St. Francis Hospice and Fairview General Practice, Dublin This project ran from 2010-12 and was funded by the Irish Hospice Foundation, Irish Heart Foundation and Baxter International Foundation. It aimed to devise, implement and evaluate appropriate palliative care responses for people with heart failure using an ‘action research’ or participatory research methodology. The care responses developed have included patient and staff information leaflets, education seminars, e-learning modules and protocols supporting both palliative and heart failure medication. The project created new opportunities for collaboration between specialist groups and has resulted in practice changes, including the new practice of admitting patients with heart failure to the in-patient and home care service of St. Francis Hospice.
The Irish Heart Foundation with the Irish Hospice Hospice Foundation have produced the following booklet about planning for the future with advanced heart failure.