Specific Life-Threatening Diseases
You may find it helpful to find out more information about the specific disease that affects the person for whom you care.
This section gives you links to the various websites that provide information relating to particular diseases, both cancer and also other life-threatening diseases.
The Irish Cancer Society has provided a comprehensive range of information useful to those who have received a diagnosis of cancer, including:
- a series of fact sheets detailing information on treatment, diagnosis and terminology used when talking about cancer
- information regarding the most common cancers
- a guide for caring for someone with cancer
This organisation has also set up an online forum so that carers and people diagnosed with these diseases have an opportunity to link up on line with other people who have dealt, or are dealing with this situation.
- Heart Failure
- Stroke, including information on how to spot the signs of a stroke and an online forum for people affected by stroke
Heart Failure Matters is a European website for patients with living with heart disease, their families and carers.
The Irish Heart Foundation and irishhealth.com have prepared an on-line video questions and answers on heart failure.
Alzheimer’s and Dementia
The Alzheimer Society of Ireland provides detailed information on Alzheimer’s disease and other forms of dementia, as well as the services available for people with the disease. Also available is an online questions and answers video on Alzheimer’s disease prepared by irishhealth.com in collaboration with the Alzheimer Society of Ireland.
Care Alliance Ireland in association with the Parkinson’s Association of Ireland carried out research on the health status of family carers of people with Parkinson’s. The report, entitled “The Caring Reality of Family Carers“,was published in June 2010.
Acquired Brain Injury
Acquired Brain Injury Ireland (ABI Ireland) was formally commissioned by the Health Service Executive (HSE) to provide community rehabilitation services locally to those with an identified acquired brain injury. To date, ABI Ireland has accredited 15 home and community services, 14 residences and a number of day resource centres across four geographical regions. These services are supported by clinical support and rehabilitation teams.
Other Disease-Specific Organisations and Websites
The following disease-specific organisations provide a range of services and information that are specific to the needs of people that have these conditions, and their family members and carers.
- Multiple Sclerosis Society
- Irish Motor Neurone Disease Association
- Irish Raynauds and Scleroderma Society
- Cystic Fibrosis Association of Ireland
- Irish Lung Fibrosis Association
Other websites which may be of interest are: