Rosabel’s Rooms was established by parents Suzanne McClean and Gary Monroe in memory of their beloved daughter Rosabel Monroe, who died suddenly and unexpectedly in April 2017, aged sixteen months.
Rosabel’s Rooms in collaboration with The Irish Hospice Foundation, was launched on the 5th January 2018, on what would have been Rosabel’s 2nd birthday.
The project will develop the following three activities:
Through the Design & Dignity Programme at the Irish Hospice Foundation, this project will facilitate the development of family-friendly bereavement suites in hospital emergency departments around Ireland, which will provide comfort and dignity for families following the loss of a loved one.
Through our Room-to-Heal fund, this project will facilitate direct financial support to families, when a child dies in Ireland. This will help to accommodate taking time off work, paying for funeral costs etc.
Over time this project will work to ensure required therapeutic supports are made available for individuals impacted by child loss.
Posts Tagged ‘Bereavement’
Do you work with bereaved? In 2018, the Irish Hospice Foundation will once again host a series of Workshops on Loss and Bereavement. These are for professionals and volunteers who are working with those who have experienced a major loss. Booking is essential. For the full list of workshops and booking details, click here
Irish Hospice Foundation Pre Budget Submission calls for a national strategy for palliative, end of life bereavement care
- 300,000 newly bereaved every year
- IHF pre-budget submission calls for change
Everyone deserves the right to a good death“Everyone in Ireland deserves to have a good death. For this to happen, improvements are needed in Primary Care, Residential Care and in Hospital settings. These improvements need to specifically focus resources and expertise available outside traditional working hours as well as the development of Specialist Palliative Care in the Midlands and North East. From a public health perspective, the IHF recommend that the Assisted Decision Making (Capacity) Act 2015 is fully commenced this year. In the meantime there is an urgency to invest resources to ensure that Irish citizens and healthcare staff are aware of and fully understand the implications of this Act, particularly the impact on advance healthcare planning and facilitating people to make choices about their own healthcare” stresses Marie Lynch, Head of Healthcare Programmes, the Irish Hospice Foundation.
Call for delivery of the best palliative, end of life and bereavement care in all care settingsThe IHF asks the Government to: Ensure everyone has access to the best care at end of life and in bereavement through a political and public policy commitment to a strategic, responsive, population-wide approach to end of life issues and ensure the health care system delivers best palliative, end of life and bereavement care in all care settings. The IHF believes that with a more strategic approach, better end-of-life care can make a real difference to both the quality of healthcare provided to the citizen and the cost of health and social care to the State – a view supported by an Oireachtas Committee in 2014. 
- According to Angela Edghill, Advoacy and Public Engagement Manager said “such a strategy supports: Government policy set out in the 2016 Programme for a Partnership Government which seeks to ensure that we have an Ireland that looks after its people from the time they come into the world to the time they leave and promises investment in end-of-life care at all life stages. This proposed integrated approach echoes that set out in the National Positive Ageing Strategy and most recently by the Finite Lives Reports .
- Delivery of the targets set out in the Sláintecare Report of the Oireachtas Committee on the Future of Healthcare 2017 which builds on the 2001 National Strategy on Palliative Care (NACPC, 2001) and the new framework for palliative care services, publication of which is expected.
The Irish Hospice Foundation, (IHF), today welcomed the report from the Dail Committee on Health and Children calling for the development of a national strategy on palliative care, end of life and bereavement.
Chief Executive Officer of the IHF, Sharon Foley, said she hoped the government will act on the findings of the report and put palliative and end of life care at the top of health and other policy agendas. She commended the Dail Committee chairman, Jerry Buttimer TD, and members for the hearings saying “a great service” had been done for the country.
Ms Foley said on average 29,000 people die in Ireland each year and as many as 290,000 are left bereaved annually. Using international research, there is an estimated €1.3 billion being spent on end of life care every year, but this spend is largely unplanned and uncoordinated.
“We passionately believe that much more can be done to support the health and social services to deliver better end of life care everywhere and this report is a major step in this direction.”
“It is the right of every person to die in comfort and dignity but this is something we must plan for. It is possible to secure high quality care for those facing death while also ensuring the very best use of resources. A national strategy on palliative care, end of life and bereavement, as recommended in todays report, will play a key role in ensuring this.”
Ms Foley said this strategy must be for the entire population – from those who need GP support to those who need special palliative care to manage their pain and other complex symptoms and to those left behind and facing grief. The strategy, she stressed, needs to be relevant to patients of all ages with all conditions including dementia.
“It also needs to be wider than healthcare. It needs to look at the economic, administrative and legal issues including the funeral industry and bereavement.”
Ms Foley also welcomed the committee recommendation that the Government address the regional disparities which exist in the provision and funding of specialist palliative care services in Ireland.
“As many as 2,500 patients have no access to in-patient hospice care in their area as they don’t exist. We have three regions in Ireland with no in patient hospice units – the north east, the midlands and the south east, as well as Kerry, Wicklow and Mayo. Citizens are living and dying with an inequitable system. We have approximately 150 hospice beds today but we should have 450 and we also have significant deficits in hospice staff. “
Ms Foley said more need to be done to help people fulfil their wish to die at home. Figures show that while 67 per cent of us would prefer to die at home only 26 per cent of us will do so while another 25 per cent will die in long stay settings. “Lots of good work is being done through the IHF Primary Palliative Care programme, the Hospice home care teams and national hospice homecare for children programme. In the latter, we we are funding 85% of the programme which is supporting families to care for children, with life limiting illness, at home.”
“This report, along with the recent report by the Ombudsman on end of life, will make a serious contribution to the national conversation on death and dying and bereavement and I warmly welcome it.”
Note: Link to Oireachtas Committee report on End of Life launched today http://www.oireachtas.ie/parliament/oireachtasbusiness/committees_list/health-and-children/reports/
The Irish Hospice Foundation extends condolences to the family, friends and colleagues of Nicky McFadden, TD.
Fine Gael TD for Longford Westmeath died yesterday after a battle with Motor Neurone disease.
The Irish Hospice Foundation benefited from her support for the hospice cause and in particular for sunflower day, which raises funds for local hospice.
May she Rest in Peace
The Irish Childhood Bereavement Network (ICBN) has today (9th December) launched its new website www.childhoodbereavement.ie which has valuable information for professionals who are supporting grieving children and young people.
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Supporting bereaved children
The website was launched at a regional meeting at Milford Care Centre in Limerick where over 20 professionals including social workers, palliative care staff, bereavement counsellors and clinical psychologists from Galway, Clare, Limerick, Cork, Kerry and Mayo attended a networking and training event organised by the ICBN.
Coping with loss can be different for everyone. In this short video by the Irish Hospice Foundation four people share their personal experiences of loss.
You can view additional Irish Hospice Foundation videos HERE
Living with loss
November is traditionally a month for remembrance. As part of our bereavement support function at the Irish Hospice Foundation we will host a bereavement public information evening ‘Living with Loss’ on Thursday November 1st in the Alexander Hotel, Fenian st from 5.30 until 8.30.
This 'drop in' evening will feature;
- Professor Tom Inglis reading from his new book written after the death of his wife Aileen
- Video presentations and general information on bereavement
- An address by Dr Tony Bates at 6.30 on the theme of 'Living with loss'
This event aims to provide information about grief and the range of supports available to bereaved people. There will be an opportunity to talk to voluntary bereavement support services about the supports they provide.
Bereavement Support Services represented include;
- A Little Lifetime Foundation
- Anam Cara Parental & Sibling Bereavement Support
- Barnardos Bereavement Counselling for Children
- Bereavement Counselling Service
- Bethany Bereavement Support Group
- Health Service Executive
- Living Links
- Rainbows Ireland
- Turas le Cheile Bereavement Support
- Turning Point
This is a free public event and booking is not neccessary, If you have queries or would like further information please contact; Iris Murray, Irish Hospice Foundation, Morrison Chambers, 4th Floor, 32 Nassau Street, Dublin 2 Tel: 01 679 3188 Fax: 01 673 0040