Home Posts tagged "End-of-life"

Posts Tagged ‘End-of-life’

Welcoming “Finite Lives” Report

Posted on: May 19th, 2017

The Irish Hospice Foundation welcomes the newly published report Finite Lives which examines State Services around dying, death and bereavement.







Angela Edghill, Irish Hospice Foundation, Advocacy and Public Engagement Manager said the ground breaking report is the first of its kind and proves that dying is everyone’s business.

Ms Edghill added: “It provides great evidence for a more coordinated and strategic approach to dying, death and bereavement by all of the agencies and Departments of State. Only good can come of this report since the issues it examines affect us all, without exception – but only if the State acts on Senator O’Donnell’s sensible, practical and reasonable recommendations.”


The report makes 16 key recommendations including the promotion of the Irish Hospice Foundation’s Think Ahead planning tool. The purpose of the Think Ahead document is to guide members of the public in discussing and recording their preferences in the event of emergency, serious illness or death.

Further information is available on www.thinkahead.ie

Finite Lives by Senator Marie-Louise O’Donnell was launched by An Taoiseach Enda Kenny this afternoon (Wednesday, 17 May) at Government Buildings.


The report is available here for download.


C’mon the Camino with Katherine Lynch

Posted on: April 18th, 2017

From Dancing Shoes to Hiking Boots

Make every step count for hospice care this September by walking the Camino de Santiago with actress Katherine Lynch in aid of the Irish Hospice Foundation (IHF).

The Leitrim-native will walk the scenic coasts of Portugal and northern Spain to support hospice care and IHF programmes such as Nurses for Night Care and Hospice Friendly Hospital Programme (HFH).

Katherine’s idonate link if you wish to support is here.

The IHF event takes place from September 24th to 1st October taking in beaches, rolling hills and gentle, flat paths with walking distances of approximately 20km daily. This section of the Camino is located in the region of Galicia – a region also known as the ‘Ireland of Spain’.


Helen McVeigh, IHF Director of Fundraising, commented: “By stepping out on the Camino you are embarking on a personal challenge but also supporting people nationwide who are facing death or bereavement. Our vision is for no one to face these difficult times without the care and support they need. This is your chance to make every step matter.

Katherine is an amazing ambassador and we’re delighted to have such a high profile personality leading the way. Nurses for Night Care service provided 2,027 nights of care in 2016 and helped 600 families. 48 hospitals have been involved in our HFH programme since it was founded 10 years ago.”

Flights, accommodation and full board are included and full details can be found here or by calling 01 6793188.



Rose Room Refurbishment for University Maternity Hospital Limerick

Posted on: March 7th, 2017

University Maternity Hospital Limerick (UMHL) has been granted funding to refurbish their Rose Room as part of The Irish Hospice Foundation (IHF) and the HSE’s Design & Dignity Grants Scheme which transforms hospital spaces for patients at end of life.

Approximately €7,200 has been provided – €5,003 of which is a Design & Dignity Grant with the remainder coming from UMHL.

Marie Hunt, CMM2 Bereavement Counselling Midwife, UMHL, said: “On average there are 4,500 babies born here every year. Although the majority of women presenting at the Antenatal Clinic have a positive outcome, sadly there are women who experience fetal loss or fetal abnormalities.

Our ‘Rose Room’ is a quiet room for compassionate care where parents can receive difficult news in privacy. It is situated adjoining one of the main ultrasound rooms with an interconnecting door.  When a doctor or ultrasonographer identifies a fetal abnormality on the ultrasound scan or when a woman/couple have been asked to return to the hospital for the results of diagnostic tests, there needs to be a private dignified comfortable space where they can be met and cared for. For the remainder of their antenatal care the women need to have this space available for them if they wish,” said Ms Hunt.

Refurbishing the room will include painting the door and walls, change of flooring, installing soft lighting, removing the wall cupboards, installing soft furniture and adding an art feature. Clinical staff have been involved in drawing up the plans from the beginning, and many of the ideas have come from midwives, doctors and ultrasonographers working at the front line.

“The newly refurbished Rose Room will represent our commitment to providing sensitive and compassionate care to women and their families when receiving bad news while providing a private and dignified space for them to receive their care,” added Ms Hunt.

The Design & Dignity scheme previously funded a mortuary refurbishment in University Hospital Limerick as well as family rooms in St John’s Hospital and Nenagh Hospital and a bereavement suite in Ennis Hospital.

Mary Lovegrove, Design & Dignity Project Manager with the IHF said: “The Design & Dignity programme has been running since 2010 and has funded 32 hospital projects across Ireland to date. Four important projects have already benefitted from the UL Hospital Group. We hope that this new ‘Rose Room’ will offer parents a dignified private space to be together at an intensely emotional time.

“Our vision for the Design & Dignity project is for an end of life sanctuary in every public hospital in the country by 2021 with approximately 60 projects completed as well as a HSE National Mortuary Capitals Programme underway,” concluded Ms Lovegrove.

Design & Dignity is a partnership project of the IHF and HSE Estates and originated in the IHF’s Hospice Friendly Hospitals Programme. The HSE has adopted Design & Dignity Guidelines for all refurbishment and new builds.

UMHL Staff

Caption: Pictured recently are Staff at University Maternity Hospital Limerick including Noreen Mann, Eileen Ronan, Eileen Quinlan, Jean Rafferty, Maria Gibbons, Rita O’Brien and Marie Hunt. UMHL has been granted funding to refurbish their Rose Room as part of The Irish Hospice Foundation and HSE’s Design & Dignity Grants Scheme.

The IHF receives core funding from Pobal from the Department of Housing, Planning, Community and Local Government’s Scheme to Support National Organisations 2016-2019.

Taoiseach urges people to Think Ahead and plan for End of Life

Posted on: July 17th, 2014

Mrs Justice Catherine McGuinness, An Taoiseach Enda Kenny and IHF CEO Sharon Foley at the the launch of Phase Two of Think Ahead



TAOISEACH Enda Kenny today (Thursday) launched phase two of Think Ahead, an initiative which encourages people to plan for end of life by recording their wishes in the event of an emergency, serious illness or death.

Developed by the Forum on End of Life in Ireland, a project of the Irish Hospice Foundation, (IHF), Think Ahead urges people to Think, Talk, Tell, and recordand review their personal preferences for future medical, financial and personal care.

Currently available as a printed form, the IHF announced that agreement has been reached with Patients Knows Best, the world’s first patient-controlled, online medical records system to pilot ‘Think Ahead online’ in Ireland as part of phase two of the initiative. This will allow people record, store and retrieve their end of life wishes and care preferences, including their medical records, online behind a securer server.

A pilot of ‘Think Ahead online’ is to be funded by Third Age, a voluntary community organisation which aims to promote the resources of older people.

Speaking at today’s launch the Taoiseach welcomed the next phase of Think Ahead. He said: “Above all Think Ahead is empowering. It puts the person who is ill at the centre of operations, making sure their end-of-life care is as close to their wish as possible. For our part in Government, we are committed to providing a framework where people’s wishes around end-of-life care can be met, including the legislation providing for Advanced Care Directives which is currently being advanced.  Of course, Think Ahead encompasses more than care preferences; this valuable tool also covers other issues like legal and financial matters, organ donation and funeral arrangements.”  

Ms Justice Catherine McGuinness, Chair of the Forum on End of Life in Ireland, said while dying and death can be difficult and daunting topics, end of life care is an important discussion that we all should have with our loved ones.

“Think Ahead is a valuable guide for people planning their financial and legal affairs. It helps prevent shock, avoid confusion and gives control, choice and peace at the end.”

“Not enough people have a pension or have made a will. Fewer still have taken the time to decide who they would like to be contacted in the event of an emergency, or how to make important decisions known to their loved ones. Our ambition is that every citizen in Ireland will use Think Ahead as an important planning tool.”

Sharon Foley, CEO of the IHF, said everyone has the right to a say in their care at all times, including end of life. “But we also have the responsibility to let other people know our decisions and this is where Think Ahead can help.”

“Open and honest discussion about death and dying can ensure that someone’s wishes for end of life are known and respected. It can also support those they love through bereavement.”

She described the roll out of Think Ahead online as a “very exciting development”.

Phase One of Think Ahead was launched in 2011 by An Taoiseach. Think Ahead 2 is a revised form which is slimmer and more accessible than the original. The biggest change is a section allowing users create an Advance Healthcare Directive, reflecting changes currently proposed in draft legislation.

The form was revised after consultation with a wide variety of different groups and individuals including legal and healthcare professionals. One important source of feedback in revising Think Ahead was research conducted by Dr Brendan O’Shea on the use of Think Ahead in General Practice, published in the Irish Medical Journal in May 2014. Dr. O’Shea made a presentation on his research at today’s launch which showed that 86% who took part felt that Think Ahead should be used more widely.  83% said they had discussions on end-of-life planning with family members after reading Think Ahead.

Dr Mohammad Al-Ubaydli, founder and CEO of Patients Know Best which will do an online pilot of Think Ahead in Ireland said at today’s launch:  “Patients Know Best is delighted to add a digital version of Think Ahead’s work within its patient-controlled medical records. The feedback on Think Ahead from a variety of users was full of praise – the end of life care planning forms are easy to understand, simple to use and useful in that they help patients and their families become more prepared.

“We’re very pleased to provide end of life care planning functionality to all Irish citizens and to our customers across seven other countries. We too believe that everyone should Think Ahead.”

Patients Know Best is a fully secure online tool which enables patients to better organise, manage and control their own health care provisions.

Áine Brady, CEO of Third Age which is funding the development of the online version of Think Ahead through PKB said: “We are delighted to support the further development of Think Ahead so it can be made available online. It will be an important resource for SAGE, the Support & Advocacy Service for Older People, which we are currently developing with the HSE and Atlantic Philanthropies.


The ‘Think Ahead’ form can be downloaded from www.thinkahead.ie.



IHF welcomes Dáil Committee report calling for development of national end of life strategy

Posted on: July 15th, 2014

The Irish Hospice Foundation, (IHF), today welcomed the report from the Dail Committee on Health and Children calling for the development of a national strategy on palliative care, end of life and bereavement.


Chief Executive Officer of the IHF, Sharon Foley, said she hoped the government will act on the findings of the report and put palliative and end of life care at the top of health and other policy agendas. She commended the Dail Committee chairman, Jerry Buttimer TD, and members for the hearings saying “a great service” had been done for the country.


Ms Foley said on average 29,000 people die in Ireland each year and as many as 290,000 are left bereaved annually.  Using international research, there is an estimated €1.3 billion being spent on end of life care every year, but this spend is largely unplanned and uncoordinated.


“We passionately believe that much more can be done to support the health and social services to deliver better end of life care everywhere and this report is a major step in this direction.”


“It is the right of every person to die in comfort and dignity but this is something we must plan for. It is possible to secure high quality care for those facing death while also ensuring the very best use of resources. A national strategy on palliative care, end of life and bereavement, as recommended in todays report, will play a key role in ensuring this.”


Ms Foley said this strategy must be for the entire population – from those who need GP support to those who need special palliative care to manage their pain and other complex symptoms and to those left behind and facing grief. The strategy, she stressed, needs to be relevant to patients of all ages with all conditions including dementia.


“It also needs to be wider than healthcare. It needs to look at the economic, administrative and legal issues including the funeral industry and bereavement.”


Ms Foley also welcomed the committee recommendation that the Government address the regional disparities which exist in the provision and funding of specialist palliative care services in Ireland.


“As many as 2,500 patients have no access to in-patient hospice care in their area as they don’t exist. We have three regions in Ireland with no in patient hospice units – the north east, the midlands and the south east, as well as Kerry, Wicklow and Mayo.  Citizens are living and dying with an inequitable system. We have approximately 150 hospice beds today but we should have 450 and we also have significant deficits in hospice staff. “


Ms Foley said more need to be done to help people fulfil their wish to die at home. Figures show that while 67 per cent of us would prefer to die at home only 26 per cent of us will do so while another 25 per cent will die in long stay settings. “Lots of good work is being done through the IHF Primary Palliative Care programme, the Hospice home care teams and national hospice homecare for children programme.  In the latter, we we are funding 85% of the programme which is supporting families to care for children, with life limiting illness, at home.”


“This report, along with the recent report by the Ombudsman on end of life, will make a serious contribution to the national conversation on death and dying and bereavement and I warmly welcome it.”


Note: Link to Oireachtas Committee report on End of Life launched today http://www.oireachtas.ie/parliament/oireachtasbusiness/committees_list/health-and-children/reports/


New report from ombudsman highlights end-of-life care

Posted on: June 27th, 2014

A ‘good death’ in Ireland  

A new report released today (June 27th) by the office of the ombudsman examines the care given to patients and families at end-of-life. 

A good death - Office of Ombudsman report June 2014

 ‘A good death; A Reflection on Ombudsman Complaints about End of Life Care in Irish Hospitals’  reviews complaints made to the office in 2013.


The report acknowledges the long lasting effects of poor communication, lack of patient autonomy and dignity in end-of-life care. As the impact of these failures on bereaved family is traumatic and long lasting, it highlights the need to learn from complaints received. 


The ombudsman highlights the work of the Irish Hospice Foundation and the Forum on end-of-life in promoting national dialogue and encouraging end-of-life care planning. 

The full report can be accessed HERE and is available on the Office of the Ombudsman website.